Table 1. Demographics of the incident Southeast Norway SLE cohort during 2000–2017 for cases with confirmed SLE diagnosis by chart review.
| TotalN=737 | FemaleN=619 | MaleN=118 | |
| Adult onset, n (%) | 701 (95.1) | 590 (95.3) | 111 (94.1) |
| Juvenile onset, n (%) | 36 (4.9) | 29 (4.7) | 7 (5.9) |
| Mean age at diagnosis, years (SD) | 39.5 (16.5) | 38.1 (15.7) | 46.7 (18.7) |
| Mean follow-up time from time of diagnosis to study end in 2017, years (SD) | 7.9 (5.2) | 7.8 (5.1) | 8.5 (5.2) |
| Median time from first SLE symptom to diagnosis*, years (IQR) | 1.0 (0–4) | 1.0 (0–4) | 1.0 (0–3.3) |
| Mean time from first SLE symptom to diagnosis*, years (SD) | 3.5 (5.5) | 3.6 (5.6) | 2.9 (4.7) |
| European descent, n (%) | 609 (82.6) | 503 (81.3) | 106 (89.8) |
| Asian descent, n (%) | 97 (13.2) | 87 (14.1) | 10 (8.5) |
| African descent, n (%) | 21 (2.8) | 19 (3.1) | 2 (1.7) |
| Other descent, n (%) | 10 (1.4) | 10 (1.6) | 0 (0.0) |
| Number of cases fulfilling the 1997 ACR criteria at diagnosis, n (%) | 574 (77.9) | 492 (79.5) | 82 (69.5) |
| Number of cases fulfilling the 2019 EULAR/ACR criteria at diagnosis, n (%) | 677 (91.9) | 574 (92.7) | 103 (87.3) |
| Deceased by end of 2017, n (%) | 57 (7.7) | 36 (5.8) | 21 (17.7) |
1997 ACR criteria, 1997 ACR classification criteria for SLE; 2019 EULAR/ACR criteria, 2019 EULAR/ACR classification criteria for SLE.
*
Missing information for 42 of 737 cases.
#, missing information for 42 of 737 cases2019criteria, the 2019 European Alliance of Associations for Rheumatology/American College of Rheumatology classification criteria for Systemic Lupus Erythematous; 1997criteria, the 1997 American College of Rheumatology classification criteria for Systemic Lupus Erythematous; EULAR/ACR, European Alliance of Associations for Rheumatology/American College of Rheumatology; N, number of cases of the incident SLE population; SD, standard deviation; SLE, systemic lupus erythematosus