Table 4.
Factors promoting (✔) or limiting (✘) access relative to Candidacy Framework
| ✘ Factors limiting access | CANDIDACY DIMENSION | ✔ Factors promoting access |
|---|---|---|
|
✘ Rationalizing symptoms o Preceding events or current conditions o Cultural attributions |
Identification Recognizing the need to seek medical attention |
✔ Public and targeted education to address lack of knowledge of symptoms |
|
✘ Lack of information about roles ✘ Lack of clear pathways ✘ Unavailability of specialists with chronic disease knowledge |
Navigation Finding and getting to care - usually via primary care provider |
✔ Empowered proactive patients (consider intersections of identity) ✔ System navigators |
|
✘ Passive patients minimize need, deservingness ✘ Low awareness of Tx options o limited decision-making, o low referral |
Appearances P resentation of symptoms to gatekeeper to establish the need for care |
✔ Empowered proactive patients (consider intersections of identity) ✔ Health literacy training ✔ Self-efficacy training ✔ Physicians who offer more time, understanding of context |
|
✘ Normalization of symptoms (e.g., aging) ✘ Perceived unavailability of specialists ✘Attributions of symptoms to PlwRA’s behaviour ✘ Cultural incongruity ✘ Limited expertise, time, consideration |
Adjudications Gatekeeper’s judgement of symptoms as needing/ deserving of an offer of Tx, screening, referral, etc. |
✔ Person-centred care approach o Respect, shared decision-making o Clear communication o Cultural safety ✔ Training, diagnostic tools |
|
✘ Difficulty in identifying effective Tx ✘ Tx incompatible with other goals (e.g., pregnancy) ✘ Burden of Tx (admin, monitoring) ✘ Side effects, long-term adverse health impact ✘ Tx resistance o Limiting/abstaining from Tx o Substitution/supplementation (e.g., CAM) |
Acceptance / resistance of offers Factors that influence acceptance or resistance to offers |
✔ Severity of symptoms (pain/disability) in need of relief ✔ Effective medication ✔ Person-centred education o Benefits and harms ✔ Availability of appropriate programming o Expert person-centred guidance o Flexibility o Responsiveness to disease limitations |
|
✘ Excess overlapping HC visits ✘ Lack of cultural safety ✘ Conflicting information from different providers ✘ Poor assessment in triage |
Permeability of HC system Influence of the configuration of the HC system and HC policies on access |
✔ Person-centred/holistic o Service configuration, policies o Location, admin ✔ Outreach (esp. rural) ✔ Multidisciplinary teams o Improve continuity of care ✔ Central intake/triage ✔ Reduce wait times |
|
✘ Rural and remote areas o Minimal HC staff, facilities o Distance to services – travel, expense ✘ Unsuitable housing – quality, location ✘ Inflexible employment policies |
Local operating conditions Environmental influences beyond the healthcare system |
✔ Travelling clinics, telehealth, travel grants |
|
✘ Loss o Disease symptoms/Tx effects (poss. resistance to Tx to ‘gain control’ over disease, self) o Physical features, sexuality o Roles ✘ Social networks that undermine self-determination and personal value ✘ Poor mental health outcomes & social isolation/withdrawal |
Embodied self Sense of self altered by disease - modified by intersections of identity, cultural and social context |
✔ Social networks that promote self-determination and personal value ✔ Programming that focuses on self-esteem |
Key to abbreviations: CAM complementary and alternative medicine, HC healthcare, PCP primary care provider, PlwRA Person/People living with rheumatoid arthritis, Tx treatment