Table 4.
Percentage of caregivers who endorsed highly valued sources of support
| Sources of support | Time point 1 Age M = 16.19, SD = 1.25 |
Time point 2 Age M = 17.81, SD = 1.30 |
Time point 3 Age M = 18.84, SD = 1.34 |
Time point 4 Age M = 19.85, SD = 1.28 |
Time point 5 Age M = 21.66, SD = 1.25 |
||||||||||
|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
| All n = 86 |
LA n = 50 |
MA n = 28 |
All n = 87 |
LA n = 53 |
MA n = 27 |
All n = 86 |
LA n = 51 |
MA n = 31 |
All n = 69 |
LA n = 43 |
MA n = 20 |
All n = 57 |
LA n = 37 |
MA n = 15 |
|
| % | % | % | % | % | % | % | % | % | % | % | % | % | |||
| Family—Informal | |||||||||||||||
| Parents (grandparents) | 13.95 | 14.00 | 17.86 | 14.94 | 18.87 | 11.11 | 18.60 | 25.49 | 9.68 | 11.59 | 11.63 | 10.00 | 12.28 | 16.22 | 6.67 |
| Sibling i.e., aunt/uncle | 5.81 | 8.00 | 3.57 | 4.60 | 5.66 | 3.70 | 3.49 | 3.92 | 3.23 | 2.90 | 4.65 | 0.00 | 5.26 | 2.70 | 13.33 |
| Relatives | 12.79 | 10.00 | 21.43 | 3.45 | 15.09 | 25.93 | 19.77 | 17.65 | 25.81 | 11.59 | 6.98 | 25.00 | 10.53 | 10.81 | 13.33 |
| Partner | 40.70 | 34.00 | 53.57 | 39.08 | 33.96 | 48.15 | 41.86 | 37.25 | 48.39 | 37.68 | 34.88 | 50.00 | 40.35 | 43.24 | 26.67 |
| Own children (sibling) | 13.95 | 12.00 | 14.29 | 14.94 | 15.09 | 14.81 | 12.79 | 17.65 | 6.45 | 13.04 | 16.28 | 10.00 | 15.79 | 21.62 | 0.00 |
| Other—Informal | |||||||||||||||
| Friends | 13.95 | 16.00 | 14.29 | 11.49 | 11.32 | 14.81 | 19.77 | 15.69 | 25.81 | 11.59 | 6.98 | 25.00 | 14.04 | 13.51 | 13.33 |
| Other parents of autistic children | 1.16 | 2.00 | 3.57 | 2.30 | 1.89 | 3.70 | 0.00 | 0.00 | 0.00 | 2.90 | 2.33 | 0.00 | 3.51 | 2.70 | 0 0.00 |
| Co-workers | 2.33 | 2.00 | 3.57 | 2.30 | 1.89 | 3.70 | 1.16 | 1.96 | 0.00 | 4.35 | 6.98 | 0.00 | 1.75 | 2.70 | 0 0.00 |
| Social Groups | 3.49 | 4.00 | 3.57 | 2.30 | 1.89 | 3.70 | 1.16 | 1.96 | 0.00 | 2.90 | 4.65 | 0.00 | 0.00 | 0.00 | 0 0.0 |
| Formal | |||||||||||||||
| Professionals | 17.55 | 20.00 | 14.29 | 9.20 | 11.32 | 7.41 | 13.95 | 11.76 | 16.13 | 11.59 | 9.30 | 20.00 | 12.28 | 16.22 | 6.67 |
| Educational resources | 3.49 | 2.00 | 7.14 | 0.00 | 0.00 | 0.00 | 3.49 | 0.00 | 9.68 | 2.90 | 2.33 | 5.00 | 0.00 | 0.00 | 0.00 |
| Respite | 1.16 | 2.00 | 0.00 | 2.30 | 3.77 | 0.00 | 1.16 | 1.96 | 0.00 | 0.00 | 0.00 | 0.00 | 0.00 | 0.00 | 0.00 |
| Religious organization | 5.81 | 6.00 | 7.14 | 10.34 | 7.55 | 18.52 | 12.79 | 15.69 | 9.68 | 5.80 | 4.65 | 10.00 | 7.02 | 10.81 | 0.00 |
| School | 19.77 | 22.00 | 14.29 | 9.20 | 9.43 | 7.41 | 12.79 | 17.65 | 3.23 | 23.19 | 27.91 | 20.00 | 5.26 | 8.11 | 0.00 |
| Government support | 0.00 | 0.00 | 0.00 | 1.15 | 0.00 | 3.70 | 1.16 | 1.96 | 0.00 | 0.00 | 0.00 | 0.00 | 0.00 | 0.00 | 0.00 |
| Group home | 0.00 | 0.00 | 0.00 | 0.00 | 0.00 | 0.00 | 0.00 | 0.00 | 0.00 | 1.45 | 2.33 | 0.00 | 1.75 | 2.70 | 0.00 |
| Other | |||||||||||||||
| No support needed | 2.33 | 0.00 | 7.14 | 3.45 | 1.89 | 3.70 | 0.00 | 0.00 | 0.00 | 2.90 | 0.00 | 10.00 | 7.02 | 0.00 | 26.67 |
| No support available | 2.33 | 2.00 | 3.57 | 3.45 | 5.66 | 0.00 | 3.49 | 1.96 | 6.45 | 5.80 | 6.98 | 0.00 | 8.77 | 5.41 | 6.67 |
Missing or un-codable data varied from 14 to 23%; sample sizes and percentages reported above are excluding missing and un-codable data
MA more able, LA less able