Table 2.
Participant characteristics by study arm
| Patients | Caregivers | |||
|---|---|---|---|---|
| EDP | BOLSTER | EDP | BOLSTER | |
| Demographic characteristics | (n = 32) | (n = 29) | (n = 22) | (n = 17) |
| Age, years, mean (SD) | 61.9 (7.5) | 60.1 (10.2) | 60.4 (10.2) | 59.3 (9.5) |
| Gender, n (%) | ||||
| Female | 31 (96.9) | 25 (86.2) | 7 (31.8) | 7 (41.2) |
| Male | 1 (3.1) | 4 (13.8) | 15 (68.2) | 9 (52.9) |
| Not reported | 0 (0.0) | 0 (0.0) | 0 (0.0) | 1 (5.9) |
| Race, n (%) | ||||
| White | 26 (81.3) | 24 (82.8) | 20 (90.9) | 14 (82.4) |
| Black or African American | 3 (9.4) | 0 (0.0) | 2 (9.1) | 0 (0.0) |
| Asian | 0 (0.0) | 2 (6.9) | 0 (0.0) | 1 (5.9) |
| Other | 3 (9.4) | 2 (6.9) | 0 (0.0) | 1 (5.9) |
| Not reported | 0 (0.0) | 1 (3.4) | 0 (0.0) | 1 (5.9) |
| Ethnicity, n (%) | ||||
| Hispanic or Latinx | 2 (6.3) | 1 (3.4) | 1 (4.5) | 0 (0.0) |
| Not Hispanic or Latinx | 27 (84.4) | 27 (93.1) | 21 (95.5) | 16 (94.1) |
| Not reported | 3 (9.4) | 1 (3.4) | 0 (0.0) | 1 (5.9) |
| Education, n (%) | ||||
| Advanced degree | 14 (43.8) | 14 (48.3) | 7 (31.8) | 11 (64.7) |
| College graduate | 11 (34.4) | 11 (37.9) | 8 (36.4) | 3 (17.6) |
| Some college or technical school | 2 (6.3) | 2 (6.8) | 6 (27.3) | 1 (5.9) |
| High school or less | 4 (12.5) | 1 (3.4) | 1 (4.5) | 2 (11.8) |
| Not reported | 1 (3.1) | 1 (3.4) | 0 (0.0) | 0 (0.0) |
| Relationship status, n (%) | ||||
| Married or partnered | 27 (84.4) | 23 (79.3) | 20 (90.9) | 16 (94.1) |
| Divorced | 2 (6.3) | 2 (6.9) | 2 (9.1) | 0 (0.0) |
| Single, never married, or widowed | 2 (6.3) | 3 (10.3) | 0 (0.0) | 0 (0.0) |
| Not reported | 1 (3.1) | 1 (3.4) | 0 (0.0) | 1 (5.9) |
| Employment status, n (%) | ||||
| Full or part-time work | 8 (25.0) | 9 (31.0) | 13 (59.1) | 10 (58.8) |
| Retired | 13 (40.6) | 11 (37.9) | 7 (31.8) | 5 (29.4) |
| Disabled | 5 (15.6) | 4 (13.8) | 0 (0.0) | 0 (0.0) |
| Unemployed | 3 (9.4) | 1 (3.6) | 2 (9.1) | 1 (5.9) |
| Other | 3 (9.4) | 3 (10.3) | 0 (0.0) | 1 (5.9) |
| Not reported | 0 (0.0) | 1 (3.4) | 0 (0.0) | 0 (0.0) |
| Relationship to patient, n (%) | ||||
| Spouse or romantic partner | 15 (68.2) | 13 (76.5) | ||
| Child | 3 (13.6) | 2 (11.8) | ||
| Parent | 2 (9.1) | 0 (0.0) | ||
| Friend | 1 (4.5) | 1 (5.9) | ||
| Sibling or sibling-in-law | 1 (4.5) | 1 (5.9) | ||
| Clinical characteristics | ||||
| Cancer diagnosis, n (%) | ||||
| Ovarian / fallopian tube / peritoneal | 22 (68.9) | 20 (68.9) | ||
| Endometrial | 4 (12.5) | 3 (10.3) | ||
| Cervical | 2 (6.3) | 1 (3.4) | ||
| Colorectal | 3 (9.3) | 0 (0.0) | ||
| Esophageal | 1 (3.1) | 2 (6.9) | ||
| Pancreatic | 0 (0.0) | 3 (10.3) | ||
| Complex care need, n (%) | ||||
| Colostomy or ileostomy | 8 (25.0) | 11 (37.9) | ||
| Total parenteral nutrition | 11 (34.4) | 9 (31.0) | ||
| Percutaneous nephrostomy | 5 (15.6) | 4 (13.8) | ||
| Venting gastric tube | 3 (9.4) | 3 (10.3) | ||
| Jejunostomy feeding tube | 1 (3.1) | 2 (6.9) | ||
| PleurX catheter | 3 (9.4) | 2 (6.9) | ||
| Indwelling drain | 2 (6.3) | 1 (3.4) | ||
| Urostomy | 1 (3.1) | 1 (3.4) | ||
| Vacuum-assisted closure of wound | 1 (3.1) | 0 (0.0) | ||
| More than one need (included in count above) | 3 (9.4) | 4 (13.8) | ||
| Recurrence status, n (%) | ||||
| No recurrence | 13 (40.6) | 11 (37.9) | ||
| Recurrence status | 14 (43.8) | 14 (48.3) | ||
| Progression during primary treatment | 5 (156) | 4 (138) | ||
Abbreviations: EDP = Enhanced discharge planning