Table 4.

Indirect cost of patients with NF1 in 2021 (calculated in days).

	NF1 pediatric patients			NF1 adult patients
	Mean ± SD	Median (Min, Max)	Number of people	Mean ± SD	Median (Min, Max)	Number of people
Caregiver work-loss days*	81.22 ± 131.90	17 (2, 365)	113	31.11 ± 62.86	15 (1, 365)	37
Self-school-loss days#	58.23 ± 89.64	30 (0.5, 365)	50	NA	NA	NA
Self-work-loss days##	NA	NA	NA	33.24 ± 62.89	14.5 (1, 365)	34

NF1, neurofibromatosis type 1.

^*Caregiver work-loss days mean the work loss of the primary caregiver of NF1 patients.

^#Self-school-loss days were calculated only in NF1 pediatric patients.

^##Self-work-loss days were calculated only in NF1 adult patients.