Table 1.
Principles guiding sibling support in critical care.
Principle | Factors | Objective |
---|---|---|
Family as context | Family as defined by family (18) | Sibling support offered reflects the family's values, priorities, experience, understanding, tone, and preferences |
Family culture, roles, and expectations are unique to each family (19) | ||
Strength-based | Families bring collective and individual strengths to the experience of critical illness hospitalization (20) | Approaches to sibling support acknowledge and build on the existing strengths of each individual and the family |
Individualized | The needs of siblings will evolve throughout the experience (21) | Approaches and interventions for sibling support are specific to the individual, developmentally aligned, and fit the unique needs of each sibling |
Sibling age and stage impact needs (9) | ||
Predictive and responsive | Family responses and needs vary and may be dynamic throughout the experience (10) | Sibling support anticipates predictable elements of the experience and responds to changes and unexpected situations |
Family and individual resources and capacity will vary through the course of the experience (22) | Ongoing assessment and adaptation of the plan for sibling support are performed | |
Fit to clinical situation | Critical illness experiences vary in their trajectory, uncertainty, risks, and outcomes | Sibling care is flexible and adapted to fit the current and predicted contexts of the clinical situation |
Goals of care and priorities can shift quickly or evolve over time | ||
Ongoing and consistent | Transparent reciprocal information sharing is essential (10) | An individual or small number of consistent providers with dedicated time work to develop a trusting rapport with the sibling |
Opportunities to clarify and build cumulative understandings are important across the critical illness experience (21) | Continuity of therapeutic relationship and approach is provided for siblings across the critical care experience |