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. 2024 Sep 9;10:20552076241272671. doi: 10.1177/20552076241272671

Table 2.

Focus group feedbacks.

Themes Feedback (problems/suggestions)
Engagement Reminders “It would be nice, if possible, for us as patients to be able to choose whether or not to receive notifications.” “Studies that have been published on apps for therapeutic compliance, in which there are regular reminders, have shown that they can improve compliance.” “I completely agree that the intrusive aspect should be avoided” “I believe that a minimum recall frequency will make it useful.” “The goal would be to make it really customizable.” “Once a week is more reasonable (than every day).”
Gamification “Useful for some people, but not necessarily indispensable for everyone. It really depends on the person.”
Functionality Completion daily information “The fact that you can actually go into one place and have successive screens, that's very good. I really like it. Yes, I like it a lot. It's very clear. We go straight to the point.” “Likewise, I think it's clear. What's more, you move from the global to the more specific.”
Self-evaluation global health perception “It's good to have a tool that lets you quickly assess your health and how you feel.” “Being able to evaluate yourself like this, you can see that over the last month, there were times when things weren’t going so well, but overall, it wasn’t too bad.”
Self-evaluation symptom intensity “You can assess a lot of symptoms. It's pretty cool.” “Just be careful between the terminology of symptoms and diagnosis. Depression is a diagnosis, I don’t know what word could be used instead, but depressed mood, for example.” “It allows us to see the whole picture of our symptoms.” “It would be great to differenciate physical and mental health symptoms” “For the symptom list, did you used an official list from WHO or something else?”
Standard questionnaires with scoring “Indicate the scientific name of questionnaires on PDF reports, so that physicians can more likely know it” Only questionnaire scores will be available on reports, would it be interesting for HCP to have the details of responses to all questions? “The aim of the score is to have a sufficient value at the end.” “The doctor doesn’t necessarily have to look at the details of all the questions”
Vocal diary “I think that for the patients, it's something that's both very interesting and perhaps essential for them. Creating a narrative of their evolution in their own words, a kind of diary that also has a personal value.” “I find it interesting, but I don’t necessarily see what it can bring me” “It's a cathartic function for the patient, and in a concrete way, it helps reduce the deleterious effects of these complicated pathologies.” “It's like a personal diary, but vocal.”
Calendar “That's good. It gives a really global view over a whole month.” “it's very concise, very visual. And with the color codes, you can actually see the days when you’re better, when you’re worse, and that really stands out.” “it also lets you know whether I’ve been more or less involved in using the application, and whether I’ve invested more in it at one time or another.” It's good to have the option to add medical appointments in the future.
Graphical report for symptoms and questionnaires “It's very visual too, the colors, the evolution, you can follow the evolution over time very easily.” “It's a great benefit, it allows us to follow our progress over the long term.”
Research module with voice recordings “That's the heart of your project, I think, voice biomarkers.” “I’m rather curious to see what it will be like” “I’m all in favor” “Will we get feedback on the results of the recordings?” All participants would be willing to use this function.
Daily life and medical diary “It's quite important for pacing to be able to note on a daily basis the duration of our various activities and not only to mention ‘Intense’ ‘Moderate’ or ‘Mild.’” “it's always possible to use the ‘other’ fields or the voice diary” “there are days when I’m a little more willing. This can be recorded in the life diary too, in the other field, or in the voice diary.”
Information Ressources “The way resources are displayed as vignettes and links, it's very clear and visual.” “What's interesting is that you use the word encouragement and motivation, not reward.” “We shouldn’t feel bad if we don’t use the application every day and fill in our diary every day.”
Chatbot integration “Very good too, it's coherent in fact, it's a follow-up tool for the Long Covid, at the same time we also get instant answers to any questions we might have.” “You just have to make sure that the answers remain up to date with the latest data.”
Aesthetic App colors “Dark and clear mode is ergonomic”
Subjective items “Well done, very well done. Honestly, there are a lot of points, the essential points of what we experience.” “Will the data be use for research purposes? “It is important to be informed on how and where our data will be stored” Does the app meet the needs? “Yes, a big yes” “There might also have been one point I’d have liked to see a little more, and that's the link with healthcare professionals.” “If we are too focused on our monitoring, it can also have, I think, a negative impact.” “Thank you very much for giving us a voice, for listening to us” “We’re trying to provide solutions to a real pathology. It's not the app that's going to get you hooked on your condition.”