Table 1.

Survey respondents’ sociodemographic characteristics. Persons living with dementia answered questions about themselves. They were also asked questions about their caregiver for them to answer. Caregivers of a person living with dementia answered questions about themselves. They also answered questions about the person living with dementia for whom they were caring (n=77)^a.

		Persons living with dementia	Caregivers	Total
Persons with dementia: age (y), mean (SD)		65.3 (9.0)	78.1 (9.9)	76.0 (10.8)
Persons with dementia: gender, n/N (%)
	Female	9/13 (69)	36/64 (56)	45/77 (58)
	Male	4/13 (31)	28/64 (44)	32/77 (42)
Dementia diagnosed, n/N (%)		11/13 (84.6)	56/64 (88)	67/77 (87)
Dementia type, n/N (%)
	Alzheimer disease	3/11 (27)	32/56 (57)	35/67 (52)
	Vascular dementia	1/11 (9)	5/56 (10)	6/67 (9)
	Frontotemporal dementia	3/11 (27)	5/56 (10)	8/67 (12)
	Mixed dementia	2/11 (18)	2/56 (4)	4/67 (6)
	Other	2/11 (18)	12/56 (214)	14/67 (21)
Time since diagnosis (years), mean (SD)		4.2 (2.1)	4.2 (2.9)	4.2 (2.7)
Persons with dementia with at least 1 caregiver, n/N (%)		8/13 (62)	64/64 (100)	72/77 (94)
Persons with dementia with >1 caregiver, n/N (%)		3/8 (38)	31/64 (55)	34/72 (47)
Dyad relationship, n/N (%)
	Spouse or partner	6/8 (75)	30/63 (48)	36/71 (51)
	Parent and child	1/8 (12)	23/63 (37)	24/71 (34)
	Other relative or friend	0/8 (0)	3/63 (5)	3/71 (4)
	Paid carer	1/8 (12)	7/63 (11)	8/71 (11)
Caregivers: age (years), mean (SD)		55.1 (15.1)	63.0 (11.2)	62.1 (11.9)
Caregivers: gender, n/N (%)
	Female	5/8 (62)	46/64 (72)	51/72 (71)
	Male	3/8 (38)	18/64 (29)	21/72 (29)

^aTotal N values differ between questions due to missing data and differences in questions displayed resulting from the participants’ responses (eg, if a person living with dementia did not respond for their caregiver).