Table 3.
Summary of end-of-study questionnaire.
| Question, n (%) |
Switch Participants N = 68 |
|---|---|
| Since you started taking ON-SXB, how is your narcolepsy? | |
| Much better | 23 (33.8) |
| Somewhat better | 20 (29.4) |
| About the same | 24 (35.3) |
| Worse | 1 (1.5) |
| Compared to other treatments you've taken for narcolepsy, how satisfied are you with ON-SXB? | |
| Very satisfied | 54 (79.4) |
| Somewhat satisfied | 11 (16.2) |
| Neither satisfied nor dissatisfied | 2 (2.9) |
| Definitely not satisfied | 1 (1.5) |
| If your friend or a family member had narcolepsy, would you recommend ON-SXB to them? | |
| Yes, definitely | 63 (92.6) |
| Not sure/no opinion | 5 (7.4) |
| Since starting treatment with ON-SXB, would you say any of the statements below are true? If you agree, check “Yes.” If you don't agree, check “No.” | |
| I am better able to get through the day without falling asleep | |
| Yes | 43 (63.2) |
| No | 14 (20.6) |
| Not sure | 11 (16.2) |
| I am better able to sleep through the night | |
| Yes | 62 (91.2) |
| No | 4 (5.9) |
| Not sure | 2 (2.9) |
| I am getting more done at work/school | |
| Yes | 40 (58.8) |
| No | 11 (16.2) |
| Not sure | 17 (25.0) |
| I am better able to socialize with friends or family | |
| Yes | 41 (60.3) |
| No | 11 (16.2) |
| Not sure | 16 (23.5) |
| Since switching from IR oxybate, please tell us if you agree with the following statement. If you agree, check “Yes.” If you don't agree, check “No.” | |
| I am better able to follow the recommended medication schedule | |
| Yes | 62 (91.2) |
| No | 3 (4.4) |
| Not sure | 3 (4.4) |
| Are there any daily activities that you previously could not do, or now can do better, since you started ON-SXB? | |
| If yes, please briefly describe | 25 (36.8) |
| No | 27 (39.7) |
| Not sure | 16 (23.5) |
ON-SXB is LUMRYZ™ (Avadel Pharmaceuticals, Chesterfield, MO). IR oxybate includes Xyrem® (Jazz Pharmaceuticals, Inc., Palo Alto, CA) or Xywav® (Jazz Pharmaceuticals, Inc., Palo Alto, CA). IR, immediate-release.