Table 4.
| Category of Improvement | Mentions in EOS, n (%) | Illustrative Example |
|---|---|---|
| Improved work/school performance | 7/25 (28 %) | “Succeed in career instead of just making it day-by-day with no hope for the future.” |
| “Work-related travel is easier now. The TSA line is faster if I'm not bringing liquid medication, and I don't need to use alarms in the middle of the night which would bother other people sharing room.” | ||
| Improved socialization/time with family | 6/25 (24 %) | “Participate w/family more, work out” |
| Improved sleep | 3/25 (12 %) | “The biggest change for me has been in the quality of sleep. It's more like I slept before narcolepsy, I wake up gradually instead of all at once …” |
| Ability to perform household chores and/or exercise | 6/25 (24 %) | “I can get up, get ready and run errands now. Before taking [ON-SXB] I would do everything in the afternoon after taking a nap, now I can do them in the morning.” |
| Better able to drive a car | 8/25 (32 %) | “I am able/feel awake enough to drive more towards the end of the day/make plans and follow through with them.” |
EOS, end of study; ON-SXB, once-nightly sodium oxybate.
a
Select responses from switch participants who responded “yes” to the question, “Are there any daily activities that you previously could not do, or now can do better, since you started taking ON-SXB?” on the EOS questionnaire.
b
If participants cited more than 1 improvement, multiple entries were accounted for.