Table 4.
Characteristic | All participants | Severe distress (score 1-2) | High distress (score 3-4) | Average distress (score 5-6) | Low to no distress (score 7-10) |
---|---|---|---|---|---|
Total, No. (%) | 126 (100) | 26 (20.6) | 36 (28.6) | 33 (26.2) | 31 (24.6) |
PROMIS/Neuro-QoL domain, mean (SD) b | |||||
Physical function | 51.3 (6.7) | 46.5 (6.2) | 50.0 (6.7) | 52.0 (6.7) | 56.1 (2.9) |
Fatiguec | 50.7 (9.9) | 58.2 (9.5) | 52.0 (9.3) | 49.2 (8.8) | 44.7 (7.9) |
Anxietyc | 55.2 (10.3) | 64.6 (9.5) | 56.3 (9.4) | 53.5 (8.0) | 48.1 (7.9) |
Depressionc | 50.6 (10.0) | 59.0 (10.7) | 51.7 (10.2) | 47.8 (8.3) | 45.7 (6.0) |
Emotional support | 53.9 (8.2) | 50.5 (9.0) | 52.2 (7.9) | 54.9 (8.4) | 57.7 (6.0) |
General self-efficacy | 51.1 (9.7) | 46.1 (10.0) | 50.1 (9.9) | 51.6 (8.4) | 56.0 (8.3) |
Cognition function | 51.6 (8.2) | 47.4 (8.9) | 51.5 (7.8) | 52.3 (7.5) | 54.5 (7.6) |
Ongoing perception of cancer’s impact, No. (%) | |||||
Cancer impacts on education/employment | |||||
No impact | 66 (53.6) | 4 (16.0) | 18 (51.4) | 23 (71.9) | 21 (67.7) |
Impact on education only | 11 (8.9) | 6 (24.0) | 1 (2.9) | 2 (6.3) | 2 (6.5) |
Impact on employment only | 27 (22.0) | 8 (32.0) | 8 (22.9) | 4 (12.5) | 7 (22.6) |
Impact on education and employment | 19 (15.5) | 7 (28.0) | 8 (22.9) | 3 (9.4) | 1 (3.2) |
Concerned that cancer would limit earnings | 57 (46.0) | 14 (56.0) | 23 (65.7) | 13 (39.4) | 7 (22.6) |
Item-level missingness may result in fewer responses than the column number indicates. PROMIS = Patient-Reported Outcomes Measurement Information System; Neuro-QoL = Quality of Life in Neurological Disorders.
PROMIS and Neuro-QoL scores are standardized to have mean (SD) of 50 (10).
Higher scores indicate worse-than-average responses for negatively worded concepts (ie, greater fatigue, greater anxiety, greater depression).