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. 2022 Nov 7;5:19. Originally published 2022 Mar 9. [Version 2] doi: 10.12688/hrbopenres.13505.2

Table 7. Needs and Recommendations identified through the consensus process.

Rank Top 10 Needs Score Rank Top 10 Recommendations Score
1 To feel respected and for your partner to
feel respected.
9.6 1 At first contact with services/ at diagnosis, everyone
should be given a multitude of resources including
information about LGBTQIA+ services.
7.25
2 To feel safe in expressing your identity if
you want to.
9.5 2 LGBTQIA+ older adults should have a choice between
integrated and dedicated services.
6.63
3 To know that you, or your partner, are
entering into a safe environment.
9.5 3 Integrated services with mandatory comprehensive
training for staff should be available where dedicated
services are unavailable.
6.63
4 To have dignity in all areas of treatment,
especially end of life care.
9.4 4 LGBTQIA+ specific services for older adults and people
with dementia should be introduced.
6.38
5 Care that values your needs as individuals
and as LGBTQI or A+ people.
9.3 5 Services’ LGBTQIA+ inclusiveness and training should be
auditable by a relevant health authority.
6.13
6 To be safe from abusive families of origin (if
you have an abusive family of origin).
9.3 6 Service-users should be asked who they would like to
help them in their care and decision making as their
dementia symptoms progress
6.0
7 In a nursing home/ residential care setting,
to be safe from homophobic/transphobic
bullying/mistreatment from other residents.
9.1 7 Independent advocates for people with dementia
should be triggered upon diagnosis. Advocates can
work with people with dementia and their close
networks to give them the care they desire most.
5.0
8 Not to feel pressured into expressing your
identity if you don’t want to/ or don’t feel
safe.
8.8 8 Training should include understanding differences
in LGBTQIA+ networks and how to incorporate
an individual’s network in care without making
assumptions; as well as intervening with homophobic/
transphobic bullying/mistreatment from family of
origin/other.
4.25
9 Provide specific trans* and intersex medical
training for doctors and care staff working
with older LGBTQIA+ people, to enable
them to work safely with unfamiliar bodies.
8.8 9 When working with transgender people with dementia,
care providers should address them as the gender
they are presenting as in the current moment and not
engage in any kind of coercion regarding their gender
expression.
4.13
10 The need to support trans* people with
dementia while also recognising the reality
of biology and that some supports may
require a focus on sex and not gender.
8.3 10 An explicitly LGBTQIA+ inclusive ethos message and
visible displays of LGBTQIA+ acceptance should be
clearly displayed in leaflets and webpages of dementia
services. This must be accompanied by staff trained in
LGBTQIA+ affirmative care.
3.0