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. 2023 Feb 28;5:19. Originally published 2022 Mar 9. [Version 3] doi: 10.12688/hrbopenres.13505.3

Table 1. Demographic characteristics of participants.

Participants self-identified as: Percentage
LGBTQIA+ adult over the age of 50 (without
dementia)
83.33
LGBTQIA+ adult over the age of 50 living with
dementia.
13.89
Care partner of an LGBTQIA+ person with
dementia
2.78
Gender Identity
Woman 57.14
Non-binary 0.00
Man 39.29
Do you consider yourself:
Cisgender 82.14
Epicene 3.57
Transgender 14.29
Unsure 3.50
Sexual Orientation
Gay 40.70
Lesbian 40.70
Bisexual 3.70
Queer * 14.80
Heterosexual 0.00
Pansexual 0.00
Asexual 0.00
Questioning 0.00

*A note on the use of the word “Queer”- At pilot stage we received feedback stating that the term Queer may be offensive to some and that it should be removed. The reasoning behind this feedback was that, although the term Queer has been reclaimed by the LGBTQIA+ community, older LGBTQIA+ adults may have experienced this as a slur throughout much of their lives and may still feel disenfranchised by the word.

Following this, the research team discussed the issue with the PPI advisory group. In their feedback they noted that the term Queer is a flexible term that describes people who are in the LGBTQIA+ community who do not fit into the “narrow” definitions that the other labels represent, and that people who use the term to describe themselves are often the most vulnerable in the LGBTQIA+ community. They also agreed that in an Irish context the term could be considered hurtful to some people.

As inclusivity and sensitivity were of upmost importance to the study, the decision was made, in conjunction with the PPI group, to keep the term Queer within the demographic ‘Sexuality’, with a disclaimer above stating that ‘Queer’ in the context of this study was meant to reflect LGBTQIA+ identity it was by no means used to offend or cause hurt.