TABLE 4.
Frequency | Types of participants | ||
---|---|---|---|
AYA specific | |||
Category | AYA specific barriers | ||
Themes | Insurance | 10 | Psychologist, nurse, other |
Education | 17 | Social worker, psychologist, nurse, other | |
Need more AYA specific treatment sites | 47 | Social worker, psychologist, nurse, nutritionist, other | |
Category | Facilitators for AYA Care | ||
Themes | Space designated for young people | 10 | Social worker, psychologist, nurse, nutritionist, other |
Supporting AYA survivors | 15 | Social worker, psychologist, nurse, other | |
Existing AYA support groups | 20 | Social worker, psychologist, nurse, other | |
Providing resources | 230 | Social worker, psychologist, nurse, nutritionist, other | |
Continuing Education | 17 | Social worker, psychologist, nurse, other | |
General | |||
Category | Barriers | ||
Themes | Financial barriers | 34 | Social worker, psychologist, nurse, nutritionist, other |
Language barriers | 8 | Social worker, psychologist | |
Poor access to technology | 5 | Psychologist, other | |
Traveling to receive treatment | 30 | Social worker, psychologist, nurse, nutritionist, other | |
Religious barriers | 11 | Social worker, psychologist | |
Conflicts between parents and providers | 25 | Social worker, psychologist, nurse, other | |
Limited medical literacy | 8 | Psychologist, nurse, nutritionist, other | |
Caring for other children besides patient | 7 | Social worker, psychologist, other | |
Difficulty in providing psychosocial support | 14 | Psychologist, nurse, nutritionist, other | |
Continuing education for staff |
5 | Social worker, psychologist, nurse | |
Costs to hospital for treating patients with cancer | 3 | Social worker, nurse | |
Structural barriers | 80 | Social worker, psychologist, nurse, nutritionist, other | |
Limited treatment options | 17 | Psychologist, nurse, nutritionist, other | |
Category | Facilitators | ||
Themes | Educating patients and families | 66 | Social worker, psychologist, nurse, nutritionist, other |
Multidisciplinary services | 57 | Social worker, psychologist, nurse, nutritionist, other | |
Comprehensive intake assessment | 15 | Social worker, psychologist, nurse, nutritionist | |
Category | Strategies to Improve Care | ||
Themes | Providing education for patients | 12 | Social worker, psychologist, nurse, other |
Providing more services for patients | 26 | Social worker, psychologist, nurse, nutritionist, other | |
Advocacy | 18 | Social worker, psychologist, nurse, other | |
Increase social support | 9 | Social worker, psychologist, nurse, other | |
Increasing funding and volunteers | 40 | Social worker, psychologist, nurse, nutritionist, other | |
Need more medical resources within the hospital for providers | 44 | Social worker, psychologist, nurse, nutritionist, other | |
Need more staff and support for staff | 32 | Social worker, psychologist, nurse, nutritionist, other |