Figure 1: Level of newborn screening programmes in each country.

Overview of newborn screening programmes for sickle cell disease across countries, based on the following categories: national—a newborn screening programme, either universal or targeted, is in place across the entire country, can be the result of progressive implementation over years in various parts of the country (eg, the USA); regional—there is no national-level programme, but specific parts of the country (eg, provinces) have an ongoing newborn screening programme in place; pilot—there is no national or regional newborn screening programme, but there are either ongoing local newborn screening efforts (eg, Kumasi, Ghana) or one-off pilot studies to support wider programmes; none—we could not find any evidence of any newborn screening programme in these countries; no data—we did not find any information for these countries. References used to compile the data presented are listed in the appendix (pp 7–9).