TABLE 2.
Items and HRQoL Domains | N Valid | Mean (SD) | Difficulty (Pi) | Discrimination (rit) |
---|---|---|---|---|
Physical | 0.65 | |||
1. I have been satisfied with my ability to: | ||||
a. bathe (ie, showering or sponging) | 380 | 1.89 (1.23) | 0.47 | 0.58 |
b. get dressed by myself | 388 | 2.93 (1.10) | 0.73 | 0.55 |
c. change my VAD dressing | 247 | 1.81 (1.70) | 0.45 | 0.44 |
d. go shopping | 368 | 2.42 (1.25) | 0.61 | 0.65 |
e. do housekeeping/minor household repairs | 377 | 2.00 (1.28) | 0.50 | 0.72 |
f. drive a car | 331 | 2.50 (1.52) | 0.63 | 0.56 |
2. I feel satisfied with the quality of my sleep. | 387 | 2.14 (1.19) | 0.54 | 0.51 |
3. I feel like my appetite is at a healthy level for me. | 391 | 2.87 (1.05) | 0.72 | 0.44 |
4. I feel like I can do activities that I enjoy. | 388 | 1.99 (1.17) | 0.50 | 0.63 |
5. I feel satisfied with my physical strength. | 391 | 1.51 (1.08) | 0.38 | 0.71 |
6. I feel satisfied with how long my energy lasts. | 390 | 1.37 (1.07) | 0.34 | 0.69 |
7. It frustrates me not being able to drink alcohol. | 387 | 3.59 (0.81) | 0.90 | −0.06 |
8. In the past 2 weeks, I was bothered by: | ||||
a. swelling of the legs or ankles | 386 | 3.37 (1.06) | 0.84 | 0.37 |
b. difficulty breathing | 388 | 2.96 (1.07) | 0.74 | 0.49 |
c. nosebleed | 383 | 3.37 (0.98) | 0.84 | 0.19 |
d. infections related to my VAD | 383 | 3.45 (1.07) | 0.86 | 0.20 |
e. intestinal bleeding | 382 | 3.89 (0.49) | 0.97 | 0.23 |
f. malfunctions of the device (the VAD did not work properly) | 382 | 3.82 (0.71) | 0.96 | 0.08 |
g. hospitalization due to my heart or the VAD | 383 | 3.50 (1.10) | 0.88 | 0.18 |
9. It frustrates me that I can't fully submerge myself in water (eg, in the bathtub or while swimming). | 390 | 1.62 (1.52) | 0.41 | 0.13 |
10. I am comfortable working with my VAD equipment. | 390 | 2.43 (1.19) | 0.61 | 0.52 |
11. I have figured out some tricks for daily living with a VAD. | 383 | 2.17 (1.17) | 0.54 | 0.30 |
12. It bothers me how the VAD affects my sitting position on chairs or in the car. | 391 | 2.21 (1.19) | 0.55 | 0.55 |
13. Because of the VAD, it is difficult to maintain balance. | 390 | 3.12 (1.07) | 0.78 | 0.35 |
14. I feel like I cannot move freely…like I'm “tied down” by my VAD. | 389 | 2.07 (1.18) | 0.52 | 0.65 |
15. I have physical discomfort related to wearing equipment. | 391 | 2.54 (1.26) | 0.64 | 0.57 |
Emotional | 0.65 | |||
16. I feel hopeful. | 381 | 2.29 (1.22) | 0.57 | 0.56 |
17. I feel sad. | 386 | 2.99 (1.04) | 0.75 | 0.64 |
18. I worry that my VAD might stop working properly. | 390 | 2.53 (1.32) | 0.63 | 0.53 |
19. I can laugh. | 387 | 2.99 (1.08) | 0.75 | 0.48 |
20. I am angry about my heart problems. | 390 | 1.80 (1.28) | 0.45 | 0.50 |
21. I have found ways to help cope with life's challenges. | 392 | 2.51 (1.05) | 0.63 | 0.52 |
22. I am confident my healthcare providers can help me if I have questions about living with my VAD. | 391 | 2.97 (0.99) | 0.74 | 0.45 |
23. I worry when I travel a distance from my VAD center. | 380 | 2.98 (1.13) | 0.75 | 0.54 |
24. I feel stressed by health issues not related to my VAD. | 389 | 2.73 (1.26) | 0.68 | 0.40 |
25. I am anxious about the uncertainty of my future. | 392 | 2.35 (1.25) | 0.59 | 0.69 |
Social | 0.61 | |||
26. I am less likely to go places because of my supplies. | 389 | 2.27 (1.38) | 0.57 | 0.55 |
27. I am burdened by extra costs related to my VAD. | 391 | 2.87 (1.21) | 0.72 | 0.27 |
28. I can contribute to the well-being of others. | 384 | 1.92 (1.23) | 0.48 | 0.51 |
29. I have someone I can talk to about my condition. | 392 | 3.18 (1.23) | 0.80 | 0.31 |
30. It is difficult to talk with healthy people about the challenges I have living with my VAD. | 391 | 2.73 (1.23) | 0.68 | 0.39 |
31. I am bothered by how my VAD makes me look. | 392 | 2.79 (1.19) | 0.70 | 0.42 |
32. My VAD keeps me from working outside the home. | 322 | 2.40 (1.44) | 0.60 | 0.48 |
33. I can do the things I need to fulfill my role in my family. | 371 | 2.29 (1.27) | 0.57 | 0.61 |
34. I am satisfied with my ability to cuddle/hold loved ones. | 367 | 2.55 (1.31) | 0.64 | 0.62 |
35. I am satisfied with my ability to be intimate with my partner. | 272 | 1.34 (1.38) | 0.34 | 0.48 |
Cognitive | 0.79 | |||
36. It is hard to remember things. | 382 | 3.02 (1.07) | 0.76 | 0.46 |
37. My mind is clear enough to do my everyday activities. | 389 | 3.20 (1.11) | 0.80 | 0.22 |
38. It is hard for me to concentrate for longer than 30 min. | 389 | 3.21 (1.08) | 0.80 | 0.50 |
Meaning/spiritual | 0.63 | |||
39. I am a valuable human being. | 376 | 3.02 (1.19) | 0.76 | 0.55 |
40. My life has meaning and purpose. | 379 | 3.04 (1.17) | 0.76 | 0.58 |
41. I have peace no matter what happen. | 378 | 2.60 (1.29) | 0.65 | 0.58 |
42. I believe God or a higher power cares for me. | 289 | 1.79 (1.63) | 0.45 | 0.58 |
43. I feel support from others who share my faith. | 230 | 2.18 (1.56) | 0.55 | 0.64 |
“N valid” indicates number of valid values per item. Those shaded in gray have extremely high difficulty indices (Pi ≥ 0.80) and low discriminatory power (rit ≤ 0.30). Values in bold indicate mean domain difficulty.
Abbreviations: HRQoL, health-related quality of life; SD, standard deviation; VAD, ventricular assist device.