Table 1.
Participants demographics stratified by race and ethnicity
| Hispanic | Non-Hispanic Asian | Non-Hispanic Black | Non-Hispanic White | Other race | |||||||
| (n = 4,138) | (n = 1,392) | (n-6,766) | (n = 35,358) | (n = 676) | |||||||
| Characteristics | N | Statistics | N | Statistics | N | Statistics | N | Statistics | N | Statistics | Overall p |
| Age (y), mean±sd | 4,138 | 70.3±10.3 | 1,392 | 69.8±10.5 | 6,766 | 71.5±9.1 | 35,358 | 71.5±10.7 | 676 | 67.9±10.5 | <0.0001 |
| Female, n (%) | 4,138 | 2,727 (65.9%) | 1,392 | 824 (59.2%) | 6,766 | 4,862 (71.9%) | 35,358 | 18,744 (53.0%) | 676 | 406 (60.1%) | <0.0001 |
| Years of Education, mean±sd | 4,138 | 12.7±10.8 | 1,392 | 17.0±10.0 | 6,766 | 14.6±6.9 | 35,358 | 16.4±7.4 | 676 | 14.3±5.6 | <0.0001 |
| Years of Education, n (%) | 4,138 | 1,392 | 6,766 | 35,358 | 676 | <0.0001 | |||||
| <12 y | 1,483 (35.8%) | 94 (6.8%) | 875 (12.9%) | 980 (2.8%) | 77 (11.4%) | ||||||
| 12 + y | 2,655 (64.2%) | 1,298 (93.2%) | 5,891 (87.1%) | 34,378 (97.2%) | 599 (88.6%) | ||||||
| Primary language, n (%) | 4,109 | 1,386 | 6,763 | 35,308 | 676 | <0.0001 | |||||
| English | 1,410 (34.3%) | 685 (49.4%) | 6,730 (99.5%) | 34,748 (98.4%) | 657 (97.2%) | ||||||
| Non-English * | 2,699 (65.7%) | 701 (50.6%) | 33 (0.5%) | 560 (1.6%) | 19 (2.8%) | ||||||
| Cognitive status at UDS visit, n (%) | 4,138 | 1,392 | 6,766 | 35,358 | 676 | <0.0001 | |||||
| Normal cognition | 1,468 (35.5%) | 612 (44.0%) | 3,010 (44.5%) | 13,932 (39.4%) | 281 (41.6%) | ||||||
| Impaired - Not MCI | 271 (6.5%) | 56 (4.0%) | 450 (6.7%) | 1,314 (3.7%) | 31 (4.6%) | ||||||
| MCI | 994 (24.0%) | 353 (25.4%) | 1,642 (24.3%) | 7,590 (21.5%) | 120 (17.8%) | ||||||
| Dementia | 1,405 (34.0%) | 371 (26.7%) | 1,664 (24.6%) | 12,522 (35.4%) | 244 (36.1%) | ||||||
| Global CDR, n (%) | 4,138 | 1,392 | 6,766 | 35,358 | 676 | <0.0001 | |||||
| 0.0 | 1,457 (35.2%) | 600 (43.1%) | 3,206 (47.4%) | 13,878 (39.2%) | 248 (36.7%) | ||||||
| 0.5 | 1,513 (36.6%) | 515 (37.0%) | 2,325 (34.4%) | 13,119 (37.1%) | 274 (40.5%) | ||||||
| 1.0 | 672 (16.2%) | 182 (13.1%) | 724 (10.7%) | 5,631 (15.9%) | 105 (15.5%) | ||||||
| >1 | 496 (12.0%) | 95 (6.8%) | 511 (7.6%) | 2,730 (7.7%) | 49 (7.2%) | ||||||
| Indicator of first-degree family member with cognitive impairment, n (%) | 3,470 | 1,949 (56.2%) | 1,201 | 616 (51.3%) | 5,590 | 2,948 (52.7%) | 31,670 | 18,960 (59.9%) | 584 | 323 (55.3%) | <0.0001 |
| Principal referral source, n (%) | 4,138 | 1,392 | 6,766 | 35,358 | 676 | <0.0001 | |||||
| Non-professional contact | 1,124 (27.2%) | 455 (32.7%) | 2,554 (37.7%) | 11,066 (31.3%) | 181 (26.8%) | ||||||
| Professional contact | 1,935 (46.8%) | 506 (36.4%) | 1,967 (29.1%) | 15,679 (44.3%) | 325 (48.1%) | ||||||
| Other referral | 993 (24.0%) | 404 (29.0%) | 2,117 (31.3%) | 7,711 (21.8%) | 164 (24.3%) | ||||||
| Unknown | 86 (2.1%) | 27 (1.9%) | 128 (1.9%) | 902 (2.6%) | 6 (0.9%) | ||||||
| Has at least one MRI scan available, n (%) | 4,138 | 784 (18.9%) | 1,392 | 157 (11.3%) | 6,766 | 919 (13.6%) | 35,358 | 5,631 (15.9%) | 676 | 91 (13.5%) | <0.0001 |
| Visit Year, n (%) | 4,138 | 1,392 | 6,766 | 35,358 | 676 | <0.0001 | |||||
| 2005 | 177 (4.3%) | 27 (1.9%) | 212 (3.1%) | 1,530 (4.3%) | 16 (2.4%) | ||||||
| 2006–2007 | 944 (22.8%) | 264 (19.0%) | 1,789 (26.4%) | 10,180 (28.8%) | 135 (20.0%) | ||||||
| 2008–2012 | 1,091 (26.4%) | 352 (25.3%) | 1,902 (28.1%) | 9,594 (27.1%) | 258 (38.2%) | ||||||
| 2013–2017 | 851 (20.6%) | 310 (22.3%) | 1,324 (19.6%) | 7,195 (20.3%) | 169 (25.0%) | ||||||
| 2018–2019 | 434 (10.5%) | 184 (13.2%) | 702 (10.4%) | 3,497 (9.9%) | 47 (7.0%) | ||||||
| 2020–2021 | 209 (5.1%) | 119 (8.5%) | 378 (5.6%) | 1,700 (4.8%) | 21 (3.1%) | ||||||
| 2022–2023 | 432 (10.4%) | 136 (9.8%) | 459 (6.8%) | 1,662 (4.7%) | 30 (4.4%) | ||||||
UDS, Uniform Data Set; MCI, mild cognitive impairment; CDR, Clinical Dementia Rating scale; MRI, magnetic resonance imaging; y, years; sd, standard deviation. *for Hispanic participants, Non-English = Spanish, as the language comparisons made in this ethnic group were limited to English versus Spanish. 24 subjects from the Hispanic group were excluded as they reported primary languages outside of English and Spanish, such as Portuguese, Italian etc. For participants of other ethnic groups, Non-English = any language outside of English. Other race = American Indian or Alaska Native, Native Hawaiian or Other Pacific Islander, and remaining multi-racial participants who did not also identify as non-Hispanic Black or non-Hispanic Asian.