Table 1.

Characteristics of the participants at the time of interview

No	Participants	Participant’s age	Sex of patients	Patient’s age	Disease type	Age at onset	Age at diagnosis	Interview time
1	Mother	43 years	male	12 years	CALD	5 years	5 years	54 min
2	Mother	48 years	male	28 years	CALD	8 years	9 years	1 h 7 min
3	Mother	53 years	male	27 years	CALD	9 years	11 years	1 h 5 min
4	Mother	56 years	male	25 years	CALD	10 years	11 years	1 h 38 min

CALD: Cerebral adrenoleukodystrophy