Table 2.
Characteristics of genetic survey respondents.
| Characteristic | Totala | ||
|---|---|---|---|
| Personally diagnosed with ALSP, n/N (%) | 22/58 (37.9) | ||
| Number of family members (including the survey respondent) who experienced ALSP symptoms n/N (%) | |||
| 1 | 10/50 (20.0) | ||
| 2 | 12/50 (24.0) | ||
| 3 | 20/50 (40.0) | ||
| 4 | 1/50 (2.0) | ||
| 5 or more | 7/50 (14.0) | ||
| Had genetic testing | Did not have genetic testing | Total | |
|---|---|---|---|
| Respondent age group (years), n/N (%) | |||
| 18–25 | 2/30 (6.7) | 2/20 (10.0) | 4/58 (6.99) |
| 26–35 | 4/30 (13.3) | 6/20 (30.0) | 10/5858 (17.22) |
| 36–45 | 5/30 (16.7) | 6/20 (30.0) | 13/58 (22.44) |
| 46–55 | 11/30 (3.7) | 3/20 (15.0) | 18/58 (31.00) |
| 56–65 | 5/30 (16.7) | 3/20 (15.0) | 10/58 (17.22) |
| 66–75 | 2/30 (6.7) | 0 | 2/58 (3.4) |
| 76 or older | 1/30 (3.3) | 0 | 1/58 (1.7) |
a
Fifty-eight surveys with qualifying responses were received, and surveys with complete results were received from 39 respondents.
ALSP: Adult-onset leukoencephalopathy with axonal spheroids and pigmented glia.