Table 2.
Category | Subcategories |
---|---|
Core Category | |
Existing in the Liminal Space Between Living with and Dying from Multiple Myeloma | |
1. Shadow Data: The Perceived Absence of a Palliative Approach to Care | |
2. Waiting for Inevitable Relapse: Knowing What the Future Holds | 2A: Living with the Knowledge of Inevitable Relapse 2B: Treatment Failure: Foretelling the Inevitable |
3. Shifting One’s Identity: Discovering a New Self While Maintaining the Old Self | 3A: A New and Permanent Label: The Effect of Multiple Myeloma on Identity 3B: New Behaviors: Forced Changes as a Result of Multiple Myeloma 3C: New Limitations: Personal Constraints That Arose a Result of Living with Multiple Myeloma |
4. Increasing Knowledge to Gain Control Over Health: Stabilizing the Uncertainty of Living with Multiple Myeloma | 4A: Value in Increasing Knowledge: Empowerment Through Health Education 4B: Multiple Myeloma Requires Self-Advocacy: From Knowledge to Action |
5. Struggling with the Flux of Symptom Management | 5A: Ongoing Side Effects: The Price to Pay for Living with Multiple Myeloma 5B: Decreased Quality of Life: The Result of Living with Multiple Myeloma 5C: Unmet Needs: When SufferingGoes Unaddressed |
6. Continual Rebalancing: Never Feeling Completely Settled | 6A: New Normal: When Back to Normal is Not an Option 6B: A Constant State of Uncertainty |
7. Dynamic Supportive Needs: Multiple Concerns Require Multiple Solutions | 7A: Primary Support Systems: Family and Close Friends Provide the Greatest Support, but Not Without Limits 7B: Support from Healthcare Providers: The Support Friends and Family Cannot Provide 7C: Support Groups: The Support Nobody Else Can Provide |