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. 2024 Nov 1;34(4):539–549. doi: 10.5737/23688076344539

Table 2.

Categories and Subcategories Identified During Analysis

Category Subcategories
Core Category
Existing in the Liminal Space Between Living with and Dying from Multiple Myeloma
1. Shadow Data: The Perceived Absence of a Palliative Approach to Care
2. Waiting for Inevitable Relapse: Knowing What the Future Holds 2A: Living with the Knowledge of Inevitable Relapse
2B: Treatment Failure: Foretelling the Inevitable
3. Shifting One’s Identity: Discovering a New Self While Maintaining the Old Self 3A: A New and Permanent Label: The Effect of Multiple Myeloma on Identity
3B: New Behaviors: Forced Changes as a Result of Multiple Myeloma
3C: New Limitations: Personal Constraints That Arose a Result of Living with Multiple Myeloma
4. Increasing Knowledge to Gain Control Over Health: Stabilizing the Uncertainty of Living with Multiple Myeloma 4A: Value in Increasing Knowledge: Empowerment Through Health Education
4B: Multiple Myeloma Requires Self-Advocacy: From Knowledge to Action
5. Struggling with the Flux of Symptom Management 5A: Ongoing Side Effects: The Price to Pay for Living with Multiple Myeloma
5B: Decreased Quality of Life: The Result of Living with Multiple Myeloma
5C: Unmet Needs: When SufferingGoes Unaddressed
6. Continual Rebalancing: Never Feeling Completely Settled 6A: New Normal: When Back to Normal is Not an Option
6B: A Constant State of Uncertainty
7. Dynamic Supportive Needs: Multiple Concerns Require Multiple Solutions 7A: Primary Support Systems: Family and Close Friends Provide the Greatest Support, but Not Without Limits
7B: Support from Healthcare Providers: The Support Friends and Family Cannot Provide
7C: Support Groups: The Support Nobody Else Can Provide