Table 1.
Modules | Generic modules on dementia | Modules on young-onset dementia | Modules on Parkinson's disease | Modules on frontotemporal dementia | Modules on Huntington's disease | |
---|---|---|---|---|---|---|
Reported in | Boots et al. (2016) | Bruinsma et al. (2021a) | Duits et al. (2020) | Bruinsma et al. (2021b) | This study | |
Target population | Spouses | Spouses | Other relatives | Spouses | Spouses | Spouses and other relatives |
Pre-diagnostic phase | x | |||||
Future concerns | x | |||||
Nursing home admission | x | |||||
Combining work and care | x | x | x | x | ||
Impact on family life | x | x | x | x | ||
Sexuality and intimacy | x | x | x | |||
Worries about heredity | x | x | x | |||
Coping with stress⁎ | x | x | ||||
Acceptance | x | x | x | x | x | x |
Balance in activities | x | x | x | x | x | x |
Changes accompanying the disease | x | x | x | x | x | x |
Communication | x | x | x | x | x | x |
Focusing on the positive | x | x | x | x | x | x |
Insecurities and rumination | x | x | x | x | x | x |
Self-understanding | x | x | x | x | x | x |
Social relationships and support | x | x | x | x | x | x |
The module on coping with stress was merged with focusing on the positive and insecurities and rumination in the Huntington module collection.