Table 1.
Planning, scoping | Data collection and analysis | Reporting and follow-up | |
---|---|---|---|
Tools/methods | Selection: strength and weaknesses compared to alternatives | Application | Transparent reporting of methods and limitations |
Data | Selection: strength and weaknesses compared to alternatives | Transparency | Transparent reporting including limitations |
Risks | Assessments of possible risks and mitigation options | Active risk management | Follow-up risk assessment: Were all risks and threats foreseen? Would the consent of users change if they knew their data was being used for this research/intervention? |
IRB/REC | Life-cycle approach along research (Planning, execution, reporting, follow-up) by qualified IRB/REC (specifically trained for technical and ethical challenges of social media research); repeated dialogue between IRB/REC and researchers | ||
Crowdsourced “Hippocratic Oath for Data Science”: Ensure that all data practitioners take responsibility for exercising ethical imagination in their work, including considering the implication of what came before and what may come after, and actively working to increase benefit and prevent harm to others. |