Table 3.
Healthcare engagement patterns among children and adults with SMA.
| Children (birth to 18 years) N = 104 | Adults (>18 years) N = 86 | |
|---|---|---|
| Utilisation of healthcare resources | ||
| Therapyautilisation, number (%) | 100 (96) | 54 (63) |
| One or more consultations in the previous 6 months, number (%) | ||
| Neurologist | 104 (100) | 72 (84) |
| Multidisciplinary clinic | 97 (93) | 10 (12) P < 0.0001 |
| Physiotherapist | 92 (88.4) | 53 (61.6) |
| Occupational therapist | 68 (65.3) | 16 (18.6) P < 0.0001 |
| Orthotist | 64 (61.5) | 7 (8) P < 0.0001 |
| Other rehabilitation servicesb | 104 (100) | 82 (95.3) |
| Primary care physician | 60 (58) | 70 (81) |
| Elective hospital admissions | ||
| Per individual in the previous 12 months (median, IQR)c | 2.0 (1.0–3.0) | 1.0 (0–1.0) |
a
SMN-augmenting therapy.
b
Includes home-based exercises, massage, hydrotherapy, stretches, respiratory physiotherapy sessions, speech & language therapy sessions, inputs for home safety equipment.
c
Includes planned admission for scoliosis/other orthopaedic surgeries, sleep study, intrathecal nusinersen, imaging under anaesthetic.