Table 1.
Sociodemographic characteristics of participants
| Demographic | People with dementia (n = 10) | Family carers (n = 30) | Paid carers (n = 3) |
Health care professionals
(n = 16) |
Interpreters
(n = 2) |
||
|---|---|---|---|---|---|---|---|
| Ethnicity: Asian | Other | – | 2 | – | – | – | |
| Bangladeshi | 4 | 13 | – | 1 | – | ||
| British | – | – | – | 2 | 1 | ||
| Chinese | 1 | 2 | – | 1 | – | ||
| Pakistani | – | 1 | – | – | – | ||
| Filipino | – | – | – | 1 | – | ||
| Vietnamese | – | 1 | – | 1 | – | ||
| Black | African | 2 | – | – | 2 | 1 | |
| British | – | 1 | – | – | – | ||
| Caribbean | 2 | 5 | 1 | – | – | ||
| Mixed/other | Bangladeshi/British | – | 2 | – | – | – | |
| Bengali/Italian | – | 2 | – | – | – | ||
| Black British (mixed) | – | – | – | 3 | – | ||
| Black Caribbean/White | 1 | 1 | – | – | – | ||
| Caribbean/Vietnamese | – | – | 1 | – | – | ||
| Somalian | – | – | 1 | – | – | ||
| White | British | – | – | – | 3 | – | |
| European | – | – | – | 2 | – | ||
| Sex | Female | 5 | 20 | 3 | 13 | 2 | |
| Male | 5 | 10 | – | 3 | 0 | ||
| Age | Mean (SD) in years | 72 (14) | 51 (17) | 50 (15) | 42 (9) | 39 (3) | |
| Marital status | Married/civil partnership | 4 | 17 | – | – | – | |
| Single | 3 | 11 | – | – | – | ||
| Widowed | 2 | 1 | – | – | – | ||
| Divorced | 1 | 1 | – | – | – | ||
| Living with | Alone | 3 | 5 | – | – | – | |
| Partner/spouse | 3 | 6 | – | – | – | ||
| Parent(s) | – | 13 | – | – | – | ||
| Children | 3 | 6 | – | – | – | ||
| Daughter-in-law | 1 | – | – | – | – | ||
| Accommodation | Council rented | – | 4 | 2 | – | – | |
| Housing association | 4 | 10 | 1 | – | – | ||
| Private rented | – | 8 | – | – | – | ||
| Owner-occupied | 5 | 8 | – | – | – | ||
| Assisted living | 1 | – | – | – | – | ||
| Education | Degree/postgraduate | 2 | 14 | – | – | – | |
| Aged 16/18+ qualifications | 2 | 12 | 3 | – | – | ||
| No formal qualifications | 6 | 4 | – | – | – | ||
| Professional roles | Nurse | – | – | – | 5 | – | |
| General practitioner | – | – | – | 3 | – | ||
| Manager | – | – | – | 1 | – | ||
| Occupational therapist | – | – | – | 1 | – | ||
| Psychiatrist | – | – | – | 1 | – | ||
| Psychologist | – | – | – | 1 | – | ||
| Geriatrician | – | – | – | 1 | – | ||
| Therapist | – | – | – | 2 | – | ||
| Neurologist | – | – | – | 1 | – | ||
| Dementia subtype | Alzheimer’s disease | 1 | 10 | – | – | – | |
| Vas cular dementia | – | 5 | – | – | – | ||
| Mixed dementia | – | 3 | – | – | – | ||
| Memory problems | 5 | 7 | – | – | – | ||
| Not known | 4 | 5 | – | – | – | ||
| First language | English | 5 | 14 | 1 | 10 | – | |
| Bengali | 4 | 12 | – | 1 | – | ||
| Cantonese | 1 | 2 | – | 0 | 1 | ||
| French | – | – | – | 1 | – | ||
| Polish | – | – | – | 1 | – | ||
| Swedish | – | – | – | 1 | – | ||
| Vietnamese | – | 1 | 1 | 0 | 1 | ||
| Somalian | – | – | 1 | – | – | ||
| Tangelo | – | – | – | 1 | – | ||
| Urdu | – | 1 | – | – | – | ||
| Zulu | – | – | – | 1 | – |