Table 1:
Overview of the tiered barriers to preventing access to PD. To achieve equitable access it is necessary to tackle every level where a problem exists.
Level | Nature of barrier | Potential solutions |
---|---|---|
High level (region/country/jurisdiction) | Lack of universal healthcare coverage for dialysis | Government to negotiate private–public partnerships that specify a proportion of PD use, or with PD manufacturers to develop PD-first or PD-preferred approaches. Avoid creating perception of PD as a second-class treatment |
High cost of PD solutions | Within-country production Development of low-cost point-of-care dialysis fluid generation |
|
Reimbursement models that favour private in-centre HD provision over community PD (or home HD) | Payers to negotiate reimbursement models that reflect the cost–utility benefits of PD | |
No opportunity for the collective patient voice to be heard | Develop national patient organisations with the confidence and ability to influence development | |
Lack of knowledge and education or lack of training opportunities | Implementation of national training curricula. Ensure that home dialysis is part of the training |
|
Dialysis provider level | Does not provide PD | Centres must be held accountable professionally to ensure that, where feasible, all kidney replacement therapy modalities, including home dialysis and transplantation are available |
PD program very small (<20 patients) or lack of staff | Develop networks with other local providers to develop critical mass, experience (follow the example of paediatric units) | |
No structured pre-dialysis education program | Centres must provide this alongside provision of the modality | |
No PD-responsive services | Non-surgical routes to PD catheter insertion, urgent start PD | |
No assisted PD | Develop an assisted PD program | |
Poor organisation culture that does not empower patients | Multiple: Support patient empowerment and presumption of eligibility if this is what the patient wants, address unconscious bias, use decision aids, provide peer support and engage in quality improvement | |
Patient level | Out-of-pocket expenses | Patient/family contribution to their care should be equitable across the treatment modalities, preferably zero or adjusted to ability to pay |
Ethnic minority or more socio-economically disadvantaged | The principle of equity should be applied—more disadvantages groups will require more support. These groups may need additional support to develop trust, e.g. through employment of ethnically diverse staff or collaboration with community groups |