Skip to main content
. 2024 Nov 26;22:102. doi: 10.1186/s12969-024-01035-6

Table 1.

Evaluation on psychosocial impact in JIA patients and parents. Items included in the interview

Psychosocial impact in JIA patients Psychosocial impact in JIA parents
Educational/Work

Patients’ school performance

• Number of missed school days/hours due to JIA

• After-school support needed due to the disease

Parents’ missed days/hours due to the child’s JIA:

• Number of missed days/hours due to the child’s JIA (father/mother/another caregiver)

• Job (father/mother/another caregiver)

• Professional level (father/mother/another caregiver)

• Need for a job change (father/mother/another caregiver)

Social

• Difficulties in participating in school and social activities

• Number of activities missed (sport, trips, culture, hobbies)

• Number of social activities missed by parents due to JIA
Psychological

• Number of monthly private/public physiotherapy sessions

• Number of private/public psychology sessions (children)

• Number of private/public psychology sessions (parents)

• Number of social activities missed by parents due to JIA