Table 1.
Evaluation on psychosocial impact in JIA patients and parents. Items included in the interview
Psychosocial impact in JIA patients | Psychosocial impact in JIA parents | |
---|---|---|
Educational/Work |
Patients’ school performance • Number of missed school days/hours due to JIA • After-school support needed due to the disease |
Parents’ missed days/hours due to the child’s JIA: • Number of missed days/hours due to the child’s JIA (father/mother/another caregiver) • Job (father/mother/another caregiver) • Professional level (father/mother/another caregiver) • Need for a job change (father/mother/another caregiver) |
Social |
• Difficulties in participating in school and social activities • Number of activities missed (sport, trips, culture, hobbies) |
• Number of social activities missed by parents due to JIA |
Psychological |
• Number of monthly private/public physiotherapy sessions • Number of private/public psychology sessions (children) |
• Number of private/public psychology sessions (parents) • Number of social activities missed by parents due to JIA |