Table 4.
JIA Impact on families lives (24 months)
N, n (%) | Days, Mean (SD) | ||
Work impact | |||
Father | Work absences due to child’s JIA, | 98, 64 (64.0) | 6.9 (6) |
Change of work due to child’s JIA | 98, 2 (2) | ||
Loss of work due to child’s JIA | 98, 1 (1) | ||
Mother | Work absences due to the child’s JIA | 101, 71 (68.9) | 8.0 (5.8) |
Change of work due to child’s JIA | 101, 6 (5.9) | ||
Loss of work due to child’s JIA | 101, 2 (2) | ||
Social impact | |||
Father | Social activities lost due to JIA | 95, 9 (9.5) | |
Impact on the partner relationship | 95, 11 (11.6) | ||
Mother | Social activities lost due to JIA | 101, 14 (13.9) | |
Impact on the partner relationship | 101, 16 (16.3) | ||
Grandparents impact | |||
Grandparents | N, n (%) | Mean (SD), Min-Max | |
Need of afterschool support by grandparents | 105, 36 (34.3) | ||
Number of hours | 214.5 (252.6); [6 - 520] | ||
Psychosocial support | |||
Private/public psychology support | 62, 16 (15) |