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. 2024 Nov 27;4(11):e0003126. doi: 10.1371/journal.pgph.0003126

Table 5. Conceptual framework of findings.

How each actor may experience or enact testimonial injustice
Parents  HCPs  CYP 
• Portrayed as gendered
• Mothers presented as also having Long Covid
• Parental accounts reported as unverified opinions
• Parents report experiencing personal attacks in response to seeking care
• Rarity discourse portrays CYP with Long Covid as outliers
• HCPs combats testimonial injustice when validating Long Covid in CYP
• HCPs invalidates Long Covid through pathologisation avoidance and overpsychologisation
• Often seen as contributing to negative healthcare experiences
• Lack of their accounts
• Portrayed as formerly very able in an attempt to bolster authority
How all actors experience hermeneutical injustice
• Parents and CYP describe feelings of invisibility as Long Covid in CYP is often unrecognised and unverified
• HCPs seen as uniformed
• Issues with diagnosis
• Long Covid in CYP validated or invalidated in relation to adult Long Covid