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. 2024 Nov 28;19:441. doi: 10.1186/s13023-024-03454-w

Table 1.

Characteristics of the NF1 cohort (N = 103) and NF1-free comparison cohort (N = 38)

Characteristic NF1
N = 103
N (%)
NF1-free
N = 38
N (%)
P-value3
Age, mean (SD) 43.28 (15.9) 45.3 (17.3) 0.516
Gender Male 52 (50.5) 17 (44.7) 0.57
Female 51 (49.5) 21 (55.3)
Severity Mild 34 (33.0) --
Moderate 26 (25.2) --
Severe 43 (41.7) --
Visibility Mild 14 (13.6) --
Moderate 21 (20.4) --
Severe 68 (66.0) --
Highest attained education 1 Short or medium2 56 (54.3) 15 (39.5) 0.03
Long 35 (34.0) 23 (60.5)
Missing 12 (11.7) --
Employment status Employed 14 (13.6) 27 (71.1) < 0.0001
Unemployed 44 (42.7) 4 (10.5)
Social transfer 41 (39.8) 7 (18.4)
Missing 4 (3.9) --
Living status Living alone 46 (44.7) 6 (15.8) < 0.0001
Living with spouse 43 (41.7) 28 (73.7)
Living with parent 9 (8.7) --
Living in shared home -- 4 (10.5)
Missing 5 (4.9) --
Cohabitation status Having partner 49 (47.6) 31 (81.6) 0.0003
Having no partner or missing2 54 (52.4) 7 (18.4)

NF1: Neurofibromatosis type 1; SD: Standard deviation

1Education levels were grouped based on the International Standard Classification of Education (ISCED-2011) codes

2 Categories were collapsed due to N < 4

3 P-values excluding missing categories except for in cohabitation status