Table 2.
Impact of OI on quality of life of adults with OI (n = 1,440)
| Impact on quality of life, n (%) a | Severely impacted | Moderately impacted | Mildly impacted | Very mildly impacted | Not impacted | I don’t know | Prefer not to say | Not applicable |
|---|---|---|---|---|---|---|---|---|
| Ability to self-care | 106 (7.4) | 237 (16.5) | 258 (17.9) | 237 (16.5) | 588 (40.8) | 4 (0.3) | 5 (0.3) | 5 (0.3) |
| Ability to live independently | 156 (10.8) | 246 (17.1) | 218 (15.1) | 216 (15.0) | 588 (40.8) | 8 (0.6) | 3 (0.2) | 5 (0.3) |
| Sexual health | 157 (10.9) | 225 (15.6) | 183 (12.7) | 158 (11.0) | 573 (39.8) | 63 (4.4) | 72 (5.0) | 9 (0.6) |
| Work hours | 253 (17.6) | 307 (21.3) | 216 (15.0) | 139 (9.7) | 444 (30.8) | 45 (3.1) | 24 (1.7) | 12 (0.8) |
| Job type | 295 (20.5) | 392 (27.2) | 235 (16.3) | 140 (9.7) | 300 (20.8) | 44 (3.1) | 23 (1.6) | 11 (0.8) |
| Career choices | 329 (22.8) | 335 (23.3) | 199 (13.8) | 135 (9.4) | 355 (24.7) | 49 (3.4) | 27 (1.9) | 11 (0.8) |
| Type of leisure activities | 214 (14.9) | 473 (32.8) | 346 (24.0) | 178 (12.4) | 218 (15.1) | 4 (0.3) | 4 (0.3) | 3 (0.2) |
| Social life | 154 (10.7) | 348 (24.2) | 290 (20.1) | 245 (17.0) | 396 (27.5) | 2 (0.1) | 2 (0.1) | 3 (0.2) |
| Relationships with family and friends | 73 (5.1) | 194 (13.5) | 226 (15.7) | 214 (14.9) | 723 (50.2) | 4 (0.3) | 3 (0.2) | 3 (0.2) |
| Romantic relationships | 200 (13.9) | 246 (17.1) | 194 (13.5) | 147 (10.2) | 552 (38.3) | 48 (3.3) | 46 (3.2) | 7 (0.5) |
| Mental health | 153 (10.6) | 293 (20.3) | 287 (19.9) | 217 (15.1) | 465 (32.3) | 14 (1.0) | 8 (0.6) | 3 (0.2) |
| Happiness | 144 (10.0) | 294 (20.4) | 307 (21.3) | 263 (18.3) | 404 (28.1) | 17 (1.2) | 8 (0.6) | 3 (0.2) |
Abbreviations: OI, osteogenesis imperfecta
aQuestions 102 & 106 “In the past 12 months, how would you describe the impact that OI has had on your life?”, where respondents received the following instructions: “This question is about understanding the ‘negative’ impacts or challenges you have faced”