TABLE 1.
Data Element Categories | Type of Data | LEARN | AdOPT | Cooperative Group Trials | SEER | CCSS |
---|---|---|---|---|---|---|
Patient demographics | Structured | X | X | X | ||
Encounters: Inpatient, day hospital, emergency room, and outpatient | Structured | X | X | X | ||
Flowsheet data (vital signs) | Structured | X | X—only height and weight | |||
Medications ordered, including outpatient prescription orders | Structured | X | X | X | ||
Medications administered | Structured | X | X | X | ||
Laboratory test results, including microbiology test results | Structured | X | X | X | X | |
Radiology result reports | Semi-structured | X | X | X | ||
Pathology result reports | Semi-structured | X | X | X | ||
Procedures | Structured | X | X | X | ||
Clinician notes | Unstructured | X | X—only includes oncology clinician notes | X | ||
Genomic data, if available | Variable by site | X | X |
Abbreviations: AdOPT, Outcomes of Human Adenovirus (HAdV) Infection and Disease in Pediatric Allogeneic Hematopoietic Cell Transplant Recipients: A Multicenter Observational Cohort; CCSS, Childhood Cancer Survivorship Study; EHR, electronic health record; LEARN, Leukemia Electronic Abstraction of Records Network; SEER, Surveillance, Epidemiology, and End Results; Trials, Cooperative Oncology Group Clinical Trials.