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. 2024 Nov 5;70:101474. doi: 10.1016/j.dcn.2024.101474

Table 1.

Participant-driven Recommendations and Possible Steps for Implementation.

Participant-driven Recommendations Possible Steps for Implementation
Pre-Visit Form a diverse research team comprising members with whom participants can relate and interact as equals
  • Create diverse research teams that reflect participant demographics and lived experiences.

  • Ask for participants' preferred names and pronouns.

  • Provide a space where speaking in a language other than English is welcomed.

Increase accessibility to research by providing transportation and flexible scheduling
  • Provide complimentary transportation and lodging for participants to travel to research sites.

  • Ensure the duration of the visit is flexible and considerate of participants’ schedules.

During Visit Provide family-oriented space and experiences
  • Do not unnecessarily separate children from their caregivers, and if absolutely needed, receive consent from both caregivers and their children.

  • Have educational resources on parenting available.

  • Provide childcare support for children during visits.

  • Offer developmentally appropriate items (toys, video games, laptops) for children and youth to use while they wait.

Enrich the campus visit to include optional on-campus activities to connect with the University
  • Provide optional on-campus experiences, such as campus tours and athletic events.

Develop safe strategies to accommodate participants with tattoos (above the shoulder) during the MRI
  • Develop strategies to safely include participants who have been more likely to be ineligible for neuroimaging studies, such as individuals with specific types of tattoos (e.g., above the shoulder, different inks, not done by professional artists, older tattoos) and those with various hairstyles (e.g., wigs, curly, coily, or kinky hair).

Incorporate engaging and interactive tasks during neuroimaging sessions
  • Add interactive and gamified approaches to the fMRI tasks.

Provide small gifts, such as a picture of their brain, in addition to financial compensation
  • Show appreciation for participants’ contributions with small gifts, such as a picture of their brain, a certificate of participation, and/or University or study-branded “swag” (e.g., t-shirts, stickers)

Post-Visit Share research findings with the research participants
  • Make research findings available to participants through personal communication methods (email, physical mail, newsletters, and text messages) and public platforms (social media, websites, expert-led discussions, and broadcasts).

  • Collaborate with community organizations and policy makers to implement proposed solutions based on research findings.

Foster bidirectional communication
  • Establish human connections with participants by asking about their backgrounds and sending birthday cards.

  • Include opportunities during the research for participants to give feedback on what topic and questions they believe are important to be asking about.