Table 1.

Interview questions for parents with a child affected by MSUD

Question No.	Question
1	What is your understanding of MSUD? a.What kind of disease is it? b.Do you know how it is inherited? c.Are you aware about how this condition is treated?
2	How did you learn about the diagnosis of MSUD in your child?
3	What did you feel when you learned about the diagnosis? a.Why did you feel ___ (parent’s answer)?
4	What did you do upon hearing the diagnosis?
5	Please describe your experience in caring for a child with MSUD. a.If it’s a difficult or easy experience, please explain why. b.Is there a difference between caring for a child with MSUD and caring for a child without MSUD?
6	In what ways has a child with MSUD affected you and your family? a.Did it have a negative impact or positive impact? Kindly explain why.

MSUD, maple syrup urine disease.