Table 3.

Themes that emerged from the parents of children with MSUD

Initial Reaction of Parents upon Diagnosis	Impact of the MSUD Diagnosis on the Family	Difference in Raising a Child with MSUD
Fear Confusion Hurt Blame Depression Inability to understand Guilt Denial Shock	Positive Closer or stronger family relationship Understanding your partner more Negative Financial concerns Lifestyle restrictions Diet restrictions Conflict in the family Separation with husband Stigma Resigned from work	Special diet or food Special attention given Gets sick easily Slow or delayed development More difficult

MSUD, maple syrup urine disease.