Table 2.

Qualitative analysis sample statements

Question	Open-text responses
Are there previous experiences that made you distrust medical research?	-Hearing about historical abuses of minorities in medical research. -Tuskegee - Tuskegee- not personal experience, obviously, but extremely troubling -Based on the history of African Americans, distrust is inherent. -Not personally, but how about Tuskegee, Nazis, etc. -theories of COVID-19 contraindicating each other when it first came out -Everything about COVID-19 -Personal experience -Seeing family members having surgery/tests/treatments that they do not need. -My mother’s medical information was shared for research purposes without her knowledge or consent -Only dishonest research(ers) that I have read about -not personal experience, I have participated in many research studies over the course of the past 5 years. However, the global pandemic and the behavior of Anthony Fauci and WHO have made me distrust much of what we were told about vaccines and the harm caused by the virus.
What would make you more comfortable to participate in research?	-Having a conversation with my doctor prior to participating. - If it was recommended to me by someone I personally know and trust, like my doctor. -to have my provider know about current studies that I could participate in -As much information as possible before starting the study and in-person conversations with the doctors conducting the research studies. -Going over all the information with the doctor, hearing about other peoples’ experiences in the study. -Additional educational resources about the topic of research and ways my participation may help people in the future -Health-literacy literature on topic provided to participants and opportunities to ask questions --Education. Stories, interviews, etc. on physician office TV’s. I’ve seen postings in cancer clinic areas for those patients but not in general waiting areas for the public. -Knowing who is funding the research and the degree to which my participation directly benefits the researcher. -Female researchers
How do you feel Indiana University/School of Medicine, Purdue University., and University of Notre Dame should connect with the public when it comes to medical research?	- Coordinate and share information and results -Tell the TRUTH -They should be very transparent about how research is funded and how that affects the researchers’ behavior toward patients. They can also emphasize how participants in research have helped tangibly improve medical care. -I think that more focus on HOLISTIC health would be massively beneficial to people. Many health problems cannot be solved by medicine alone, we need safe streets where kids and adults can exercise, healthy food programs, mental health services. This would all make people better all around, and then if they need medicine it should be AFFORDABLE - meaning that the medical communities at these schools should be lobbying for UNIVERSAL healthcare and for Big Pharma to stop price gouging the citizens of the US. -let people know when their contributions have contributed to research -Provide general public education on different types of studies, what those types of research studies entail, who is involved (various staff and their job descriptions), how privacy and safety are maintained, etc. This could be done as a public service style format, or a series of interviews (staff and human interest stories) or other formats as suggested by media professionals. - increased social media exposure would be beneficial in attracting younger populations and a more obvious presence within doctors’ offices/health clinics could attract older adults and/or more specific patient populations -advertise more, share stories of medical research and how it led to treatment or diagnosis for more people, sharing good outcomes and highlights advertise new, needing people for research events. --come to the masses through local news request. -More publicity on ongoing research.