Table 3.
Final priority outcomes of pelvic exenteration, which met ‘consensus in’ criteria among patient, carer, and clinician stakeholder groups
| Priority outcome | Lay description | Patients (n = 21) | Carers (n = 4) | Clinicians (n = 116) | Combined rank | |||
|---|---|---|---|---|---|---|---|---|
| Median | Rank | Median | Rank | Median | Rank | |||
| Survival | ||||||||
| Overall survival | The length of time until death from any cause (including cancer and non-cancer causes) | 90.0 | 1 | 77.5 | 9 | 85.0 | 2 | 3 |
| Disease-free survival | The length of time a person lives without cancer coming back | 89.0 | 2 | 88.5 | 5 | 80.0 | 5 | 4 |
| Local recurrence-free survival | The length of time a person lives without cancer coming back in the pelvis | 86.0 | 6 | 91.0 | 3 | 85.0 | 2 | 2 |
| Cancer recurrence | ||||||||
| Distant recurrence | The cancer coming back elsewhere in the body, other than the pelvis | 83.0 | 9 | 94.5 | 1 | 70.0 | 8 | 8 |
| Patient-reported outcomes and functioning | ||||||||
| Psychological functioning | Ability to think, reason, remember, and make decisions, as well as experience and cope with emotions, including fear of the cancer coming back | 84.0 | 8 | 80.5 | 8 | 76.0 | 7 | 9 |
| Physical functioning | Ability to perform daily activities, such as walking, climbing stairs, and carrying out self-care tasks | 87.0 | 5 | 88.0 | 6 | 80.0 | 5 | 5 |
| Global quality of life | Overall well-being, including physical health, emotional well-being, social relationships, and life satisfaction | 85.0 | 7 | 81.5 | 7 | 85.0 | 2 | 5 |
| Mobility | Being able to walk or get around | 88.0 | 3 | 90.5 | 4 | 70.0 | 9 | 5 |
| Pathological outcomes | ||||||||
| Resection margins | Surgical removal of the entire tumour in one piece, with clear margins | 88.0 | 3 | 92.5 | 2 | 90.0 | 1 | 1 |
The median score of relative importance and corresponding rank for each stakeholder group is presented, as well as the combined rank.