Table 4.
Broad categories/themes emerging from the question submission
| Broad categories | Proportion in all questions, n (%) |
|---|---|
| Breathing problems |
134 (3.84) |
| Education |
213 (6.11) |
| Surgery |
406 (11.64) |
| Facial appearance |
361 (10.35) |
| Feeding |
232 (6.65) |
| Genetics |
164 (4.7) |
| Hearing |
113 (3.24) |
| Mental health |
213 (6.11) |
| Pregnancy |
110 (3.15) |
| Parent/carer worries |
276 (7.92) |
| Scar care |
135 (3.87) |
| Social issues |
302 (8.66) |
| Speech and language |
397 (11.39) |
| Teeth |
250 (7.17) |
| Other |
181 (5.19) |
| Total | 3487 (100) |