Table 1.
Caregiver citizen scientist sociodemographics and subjective well-being, health-related quality of life and mental health symptoms
| Variable | N | % (if applicable) |
|---|---|---|
| Sociodemographics | ||
| Number of participants | 21 | |
| Age (median [IQR]) | 53.0 [40.0–63.0] | |
| Last completed level of education (% out of 21 participants) | ||
| None | 2 | 9.5% |
| Primary school | 6 | 28.6% |
| Secondary school | 9 | 42.9% |
| Technical – college degree | 4 | 19.0% |
| Relationship to the head of the household (% out of 21 participants) | ||
| Head of the household | 14 | 66.7% |
| Wife/partner | 5 | 23.8% |
| Daughter/stepdaughter | 1 | 4.7% |
| Mother/mother-in-law | 1 | 4.7% |
| Care related | ||
| Daily hours of unpaid caregiving (median [IQR]) | 13.8 [9.0–15.8] | |
| Number of care dependents (median [IQR]) | 2.0 [1.0–3.0] | |
| Care-receiver group (% out of 21 participants)1 | ||
| Children | 11 | 52.4% |
| Elderly | 8 | 38.1% |
| People with disabilities | 7 | 33.3% |
| Care Block services and attendance | ||
| Services they attend to in the Care Block1 (% out of 21 participants) | ||
| Education | 18 | 85.7% |
| Physical activity and psychosocial orientation | 7 | 33.3% |
| Spaces for socializing with fellow caregivers | 3 | 14.3% |
| Care recipient care services | 2 | 9.5% |
| Transport mode to the Care Block (% out of 21 participants) | ||
| Walking | 9 | 42.9% |
| Public transport | 6 | 28.6% |
| Informal transport | 2 | 9.5% |
| Non-reported | 3 | 14.3% |
| Subjective well-being, Mental health symptoms | ||
| Life satisfaction (average SD)2 | 7.0 2.2 | |
| Symptoms of depression (% out of 21 participants)3 | 4 | 19.0% |
| Symptoms of anxiety (% out of 21 participants)3 | 5 | 23.8% |
IQR, interquartile range; SD, standard deviation
1Percentages do not sum up to 100% because categories are not mutually exclusive (e.g., one caregiver can take care of children and people with disabilities at the same time)
21–10 satisfaction scales (1 = extremely unsatisfied, 10 = extremely satisfied)
30–3 Likert scales (0 = not at all, 1 = several days, 2 = more than half of the days, 3 = nearly every day)