Table 2.

Topics and related examples frequently recurring among caregivers

Topics and related examples frequently recurring among caregivers
● Help in caregiving (what to do in specific situations, strategies and advice) “I am doing enough?” “What changes will I have to face?” “Can I still go out and travel with my loved one who has the condition?” “Sometimes it feels like they don't understand me… how can I communicate?"
● Feeling supported and sharing (talking to someone) “I need moments to vent out.” “I often feel guilty, but no one understands me.” “I spend my days with a stranger now."
● Finding new family adaptation and balance “I don't have time for myself.” “Everyone distanced themselves after the diagnosis.” “I don't know how to act with our children; they have their own lives.”
● Information about the condition and treatments “Can we hope for a cure in the coming years?” “How can I help my loved one remember?” “Is the condition hereditary?” “How will the illness progress in the coming years?”