Table 3.
Medical doctors’ practice descriptions summarized by specialty (n [%]).
| Pediatrics |
Internal medicine |
Neurology |
Surgery |
||||||
|---|---|---|---|---|---|---|---|---|---|
| Clinic (n = 8) |
Hospital (n = 6) |
Medical daycare (n = 1) |
Clinic (n = 23) |
Hospital (n = 2) |
Clinic (n = 4) |
Hospital (n = 1) |
Clinic (n = 4) |
Hospital (n = 1) |
|
| Regular consultation | 5 (71.4) | 6 (100) | 1 | 18 (78.3) | 2 | 4 | 1 | 2 (50) | 1 |
| Patient education | 3 (42.9) | 3 (50) | 1 | 8 (36.4) | 2 | 2 (50) | 0 | 0 | 0 |
| Examination | 2 (25) | 2 (33.3) | 1 | 17 (77.3) | 2 | 2 (50) | 1 | 1 (25) | 0 |
| Paperwork | 3 (37.5) | 5 (83.3) | 1 | 6 (26.1) | 2 | 2 (50) | 1 | 1 (25) | 0 |
| Vaccination | 3 (50) | 1 (16.7) | 1 | 8 (36.4) | 2 | 1 (25) | 0 | 1 (25) | 0 |
| Symptomatic treatment | 2 (25) | 3 (50) | 1 | 7 (33.3) | 2 | 1 (25) | 0 | 1 (25) | 0 |
| Coordination of care | 2 (25) | 1 (16.7) | 1 | 6 (27.3) | 1 (50) | 2 (50) | 0 | 0 | 0 |
| Management using medical device |
2 (25) | 3 (50) | 1 | 6 (27.3) | 1 (50) | 0 | 0 | 1 (25) | 0 |
| Referral | 2 (25) | 1 (16.7) | 1 | 4 (17.4) | 2 | 1 (25) | 0 | 0 | 0 |
| Management of psychological symptoms |
2 (25) | 2 (33.3) | 1 | 1 (4.5) | 0 | 0 | 0 | 0 | 0 |
| Rehabilitation | 2 (25) | 1 (16.7) | 1 | 1 (4.5) | 1 (50) | 0 | 0 | 0 | 0 |
| Nursing care | 3 (37.5) | 0 | 1 | 1 (4.5) | 0 | 0 | 0 | 0 | 0 |
| Table 3 continued | |||||||
| Ophthalmology | Otolaryngology | Dermatology | Psychiatry | Gynecology | Orthopedic | ||
|
Clinic (n = 4) |
Clinic (n = 10) |
Clinic (n = 2) |
Clinic (n = 5) |
Clinic (n = 1) |
Clinic (n = 1) |
Hospital (n = 2) |
|
| Regular consultation | 3 (75) | 6 (60) | 2 | 5 | 0 | 1 | 1 (50) |
| Patient education | 3 (75) | 4 (44.4) | 1 (50) | 5 | 0 | 1 | 1 (50) |
| Examination | 0 | 0 | 1 (50) | 0 | 0 | 1 | 1 (50) |
| Paperwork | 0 | 0 | 0 | 5 | 0 | 0 | 1 (50) |
| Vaccination | 0 | 0 | 0 | 0 | 0 | 0 | 0 |
| Symptomatic treatment | 0 | 1 (11.1) | 0 | 1 (20) | 0 | 0 | 0 |
| Coordination of care | 0 | 0 | 1 (50) | 1 (20) | 0 | 0 | 0 |
| Management using medical device |
0 | 0 | 0 | 0 | 0 | 0 | 0 |
| Referral | 0 | 0 | 0 | 1 (20) | 0 | 0 | 0 |
| Management of psychological symptoms |
0 | 0 | 0 | 5 | 0 | 0 | 0 |
| Rehabilitation | 0 | 0 | 0 | 0 | 0 | 0 | 1 (50) |
| Nursing care | 0 | 0 | 0 | 0 | 0 | 0 | 0 |
Participants were asked what extent they provide care to adults with childhood-onset neurologic conditions using a 5-point Likert scale (1 = strongly disagree to 5 = strongly agree). “Strongly agree” and “agree” were dichotomized as “yes.”