Table 1.

Participant demographics.

Interviewee (n=17)
Participant Caregiver Participant and caregiver joint interview	10 (59 %) 5 (29 %) 2 (12 %)
Age of AYA participant at baseline interview (n=17)
17 18 19	13 (76 %) 3 (18 %) 1 (6 %)
Sex of AYA participant (n=17)
Female Male	8 (47 %) 9 (53 %)
Ethnicity* (n=17)
East Asian South East Asian Middle Eastern White/Caucasian (North American and European)	2 (12 %) 1 (6 %) 2 (12 %) 15 (88 %)
Sex of caregiver interviewee (n=7)
Female Male Did not respond	5 1 1
Referral site (n=17)
ACH Stollery Glenrose	6 (35 %) 9 (53 %) 2 (12 %)
Primary Diagnosis Category (n=17)
Neurology Genetic/Metabolic Cardiovascular	4 (24 %) 3 (18 %) 2 (12 %)
Developmental Hematology/Immune deficient Rheumatology GI/Liver Nephrology Endocrine Renal/Urology	2 (12 %) 1 (6 %) 1 (6 %) 1 (6 %) 1 (6 %) 1 (6 %) 1 (6 %)
Number of clinics involved in care (n=17)
1 2 3 4 5 6 7 8 9	5 (28 %) 4 (22 %) 3 (17 %) 1 (6 %) 1 (6 %) 0 (0 %) 0 (0 %) 3 (17 %) 1 (6 %)
Presence of self-reported mental health conditions at baseline (n=17)
Yes No	6 (35 %) 11 (65 %)
Post-secondary aspirations at baseline* (n=17)
Trade-school College/certificate University Work Prefer not to answer Other	3 (18 %) 5 (29 %) 6 (35 %) 8 (47 %) 1 (6 %) 3 (18 %)
Vocational status at end of intervention (n=17)*
College/certificate University High School Work Other community activities	2 (12 %) 3 (18 %) 2 (12 %) 4 (24 %) 9 (53 %)

^*Participants could select more than one answer, thus resulting in a total greater than 100 %