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. 2024 Dec 20;19:473. doi: 10.1186/s13023-024-03477-3

Table 1.

Characteristics of included studies

References Year Country Study design N Gender Mean age Diagnosis Online, rare or rural? Outcomes
Akers et al. [27] 2021 UK Qualitative 11 100% male 67 Penile cancer Rare cancers Loneliness
Bender et al. [28] 2022 Canada Quasi-experimental 34 Not reported Not reported Prostate cancer Online or telephone Anxiety, depression, quality of life, perceived social support
Canella et al. [29] 2023 Switzerland Mixed methods 165 24% male 44.8 Mixed Online or telephone. Included rare cancer patients Coping
Changrani et al. [30] 2008 United States Randomised controlled trial 68 0% male 46.8 Breast cancer Online or telephone Depression, quality of life, personal growth
Crane-Okada et al. [31] 2012 United States Randomised controlled trial 142 0% male 61.8 Breast cancer Online or telephone Anxiety, coping, perceived social support
Gotay et al. [32] 2007 United States Randomised controlled trial 305 0% male Not reported Breast cancer Online or telephone Depression, distress
Harmon et al. [33] 2021 United States Cross-sectional observational 102 0% male 59.2 Breast cancer Online or telephone Anxiety, coping
Hirayama et al. [34] 2022 Japan Cross-sectional observational 47 57% male Not reported Mixed Online or telephone. Included rare cancer patients Coping
Houts et al. [35] 1986 United States Randomised controlled trial 32 0% male 49.8 Gynaecologic Online or telephone. Included rare cancer patients Depression, distress
Hoybye et al. [36] 2010 Denmark Randomised controlled trial 794 11% male 54.1 Mixed Online or telephone. Included rare cancer patients Depression, distress
Kaal et al. [37] 2018 Netherlands Cross-sectional observational 66 62% male 29.8 Mixed Online or telephone. Included rare cancer patients Loneliness
Klemm [38] 2012 United States Longitudinal 50 0% male 52.2 Breast cancer Online or telephone Depression
Kosugi et al. [39] 2021 Japan Cross-sectional observational 334 20% male 43.1 Mixed Online or telephone. Included rare cancer patients Loneliness
Lepore et al. [40, 41]1 2019 United States Randomised controlled trial 183 0% male 52.3 Breast cancer Online or telephone Anxiety, depression, distress
Lieberman and Lepore [42] 2017 United States Quasi-experimental 370 0% male 46.2 Breast cancer Online or telephone Depression
Osei et al. [43] 2013 United States Randomised controlled trial 40 100% male 67.2 Prostate cancer Online or telephone Quality of life
Salzer et al. [44] 2010 United States Randomised controlled trial 78 0% male Not reported Breast cancer Online or telephone Distress, quality of life
Sansom-Daly et al. [45] 2021 Australia Randomised controlled trial 40 48% male 20.6 Mixed

Online or telephone

Included 30% living in regional locations. Included rare cancer patients

Anxiety, coping, depression
Setoyama, Yamazaki and Namayama [46] 2011 Japan Cross-sectional observational 220 0% male Not reported Breast cancer Online or telephone Anxiety, depression
Toija et al. [47] 2019 Finland Randomised controlled trial 260 0% male 60 Breast cancer Online or telephone Quality of life
van Erp et al. [48] 2023 Netherlands Quasi-experimental 10 40% male 25.1 Mixed Online or telephone. Included rare cancer patients Distress, quality of life
Vilhauer, McClintock and Matthews [49] 2010 United States Randomised controlled trial 30 0% male 52.7 Breast cancer Online or telephone Depression, wellbeing
Winzelberg et al. [50] 2003 United States Randomised controlled trial 72 0% male 49.5 Breast cancer Online or telephone Anxiety, depression, PTSD, stress

1Data merged from two separate papers with the same sample