Table 2.

Potential triggers for PC consult for people with SCD

Diagnosis of end-stage organ dysfunction (eg, congestive heart failure, ESRD, pulmonary hypertension, neurological complications due to stroke/sildent infarcts)

Functional impairment (eg, inability to complete instrumental activities of daily living or activities of daily living)

Poor health related quality of life

Unclear goals of care (eg, consistent deference to medical teams' decisions or nonadherence to SCD-directed therapy)

Complex medical decision-making

Increased frequency of emergency room visits and hospitalizations over the past 3-6 months compared to baseline

ICU unit admission

Referral for bone marrow transplant or gene therapy