Table 1.

Participant demographics

Characteristics	Parent/Guardian (n = 72) n (%)	Patient (n = 72) n (%)
Ehlers Danlos Syndrome Hypermobile Subtype		72 (100)
Age in years
8–12		12 (17)
13–15		20 (28)
16–18		37 (51)
19–22		3 (4)
22–29	1 (1)
30–39	15 (21)
40–49	41 (57)
50–59	13 (18)
60–69	2 (3)
Sex at Birth, Female	67 (93)	58 (81)
Gender diverse		9 (13)
Caucasian	61 (85)	64 (89)
Education Status
High School Graduate	70 (97)
College Education, No degree	22 (31)
College Degree	39 (54)
Master’s or Graduate Degree	14 (19)
Household Income (average $ per year)
Less than 50,000	21 (29)
50,000 to 100,000	27 (38)
More than 100,000	24 (33)
Location
Urban	8 (11)
Suburban	40 (56)
Rural	24 (33)