Skip to main content
. 2024 Dec 30;19:494. doi: 10.1186/s13023-024-03399-0

Table 2.

Adherence to risdiplam among patients with SMA overall, by SMA type, and by age groups

Adherence Overall
(N = 86)
SMA type Age groupa
Type 1
(n = 1)
Type 2
(n = 18)
Type 3
(n = 47)
Type 4
(n = 20)
0–2 years
(n = 3)
3–5 years
(n = 10)
6–12 years
(n = 17)
13–17 years
(n = 15)
≥ 18 years
(n = 41)
PDC,b mean ± SD 0.89 ± 0.18 0.97 ± NA 0.89 ± 0.18 0.90 ± 0.19 0.88 ± 0.19 0.96 ± 0.04 0.92 ± 0.15 0.85 ± 0.24 0.88 ± 0.23 0.91 ± 0.16
PDC,b median (IQR) 0.98 (0.89, 1.00) 0.97 (NA)

0.98

(0.91, 1.00)

0.98 (0.88, 1.00) 0.96 (0.86, 0.99) 0.97 (0.91, 1.00) 0.98 (0.91, 0.99) 0.97 (0.86, 1.00) 0.97 (0.88, 1.00) 0.98 (0.91, 0.99)
Adherent patients (PDC ≥ 0.80), n (%) 72 (83.7%) 1 (100.0%) 15 (83.3%) 41 (87.2%) 15 (75.0%) 3 (100.0%) 9 (90.0%) 13 (76.5%) 12 (80.0%) 35 (85.4%)

IQR, interquartile range; NA, not applicable; PDC, proportion of days covered; SD, standard deviation; SMA, spinal muscular atrophy

aAge was measured at the index date

bPDC was calculated as the total number of days during which a patient had risdiplam available based on the reported days of supply of risdiplam beginning from the date of the first dispensing of risdiplam until their latest dispensing (plus days of supply), divided by the length of the adherence assessment period (i.e., study period) in days