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. Author manuscript; available in PMC: 2025 Jan 2.
Published in final edited form as: J Ment Health Res Intellect Disabil. 2023 Jun 11;17(4):346–368. doi: 10.1080/19315864.2023.2223546

Table 3.

Interview protocol excerpt

Questions Additional probes

When did you first realize that your family member was self-harming? Tell me about this realization and what came next. If you initiated treatment, how did you know that it was time to seek treatment for your family member’s self-harm?
If you initiated treatment, how did you go about seeking treatment? Who did you turn to?
Are you satisfied with the treatment your family member has received for self-harm? If you are not satisfied, what do you wish you or providers had done differently?
If you are satisfied, what treatment experiences have made you feel this way?
Imagine you have a friend who has a family member with similar disabilities as your own. This friend comes to you with concerns that their family member has begun engaging in self-harm. What would you suggest they do? What would be the best way to inform people about how to find help?