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. 2024 Dec 20;7:e65198. doi: 10.2196/65198

Table 3.

Site-specific recommendations based on family and departmental feedback.

Item Explanation
Provide physician-recommended, specific, digital resources for families
  • Throughout the surgical experience (booking to full recovery), resources and instructions for families should be physician-recommended; specific to the patient, procedure, and hospital; and available electronically.

  • Health care providers should collaborate routinely to ensure resources are comprehensive, up-to-date, and procedure-specific. Collaborative sessions may be facilitated by the BCCHa PainCare360 team [26].

Ensure timely communication
  • To reinforce proactive preparedness, health care providers should optimize the timing of information and reminders to families about their surgery, recovery, and pain management strategies. For families who had their preoperative discussion many weeks or months before their surgery, a 1-week reminder may allow them to gather necessary care supplies, arrange postoperative therapies, and coordinate any unique family needs. Where possible, families should have the option to receive postoperative recovery information before the surgery instead of during discharge.

Promote empowerment and understanding at discharge
  • During discharge, nurses should provide opportunities for families to consolidate their understanding of their child’s postoperative care plan, for example, by allowing families to explain their discharge instructions back to the health care providers. If any instructions between nurses and doctors are contradictory, families should have time to clarify while they are at the hospital.

  • If a family is hesitant about their discharge from the hospital, nurses should explain the rationale for the discharge, reassure the family, address any concerns, and reiterate the range of postdischarge supports available.

Continue to listen
  • The BCCH postoperative follow-up or POFUb program [12] has been helpful for families and should be continued.

  • We should also revise and reimplement the perioperative self-report survey piloted in this study and send it to all families to supplement the POFU program so that health care professionals can be updated on their patients’ outcomes and address concerns in near-real-time. Survey questions should be revised based on participant feedback and expanded to include nonfluent English speakers and patients with neurodevelopmental disabilities by making translated and accessible versions available.

aBCCH: BC Children’s Hospital.

bPOFU: postoperative follow-up.