Table 2.

Experiences.

	n	Distribution % (95% CI)
Q12-Encounter frequencies with RD cases (n = 237)
Frequently (11–50 cases per year)	118	49.79 (43.48–56.11)
Sometimes (3–10 cases per year)	72	30.38 (24.88–36.51)
Rarely (1–2 cases per year)	39	16.46 (12.28–21.70)
Never	8	3.38 (1.72–6.52)
Q13-Encounter frequencies with RD cases during the follow-up process (n = 237)
Frequently (11–50 times per year)	81	34.18 (28.43–40.43)
Sometimes (3–10 times per year)	89	37.55 (31.63–43.87)
Rarely (1–2 times per year)	52	21.94 (17.14–27.63)
Not follow up	15	6.33 (3.87–10.18)
Q14-Capability for regular patient follow-up (n = 237)
Yes	164	69.20 (63.05–74.73)
No	73	30.80 (25.27–36.95)
Q15-The Reasons for the inability to regularly follow-up patients (n = 72)
Referring to advanced centers	32	44.44 (33.54–55.91)
Patients’ failure to proceed the follow-up	28	38.89 (28.47–50.44)
Patient is referred to and followed up by appropriate departments	9	12.50 (6.72–22.08)
Other	10	13.89 (7.72–23.71)

Response rate for Q12–Q14: 94.80% and for Q15: 98.63%.