Table 3.
Suitability and understandability of terms for the assessment of gender (identity).
How important is assessing the gender of patients or participants in clinical research independent of the research questions? | ||||||||
---|---|---|---|---|---|---|---|---|
Terms | First survey | Second survey | ||||||
Answer Scale | ||||||||
Very suitable n (%) |
Suitable n (%) |
Less suitable n (%) |
Not suitable n (%) |
Very suitable n (%) |
Suitable n (%) | Less suitable n (%) |
Not suitable n (%) |
|
Femalea | 1 (5.9) | 3 (17.6) | 6 (35.3) | 7 (41.2) | – | – | – | – |
Malea | 1 (5.9) | 3 (17.6) | 6 (35.3) | 7 (41.2) | – | – | – | – |
Intersexa | 1 (5.9) | 1 (5.9) | 4 (23.5) | 11 (64.7) | – | – | – | – |
Diverse | 5 (29.4) | 4 (23.5) | 4 (23.5) | 4 (23.5) | 1 (10.0) | 4 (40.0) | 2 (20.0) | 3 (30.0) |
Womana | 12 (70.6) | 5 (29.4) | – | – | – | – | – | – |
Mana | 12 (70.6) | 5 (29.4) | – | – | – | – | – | – |
Transgenderb | 8 (47.1) | 3 (17.6) | 4 (23.5) | 2 (11.8) | 3 (30.0) | 4 (40.0) | 1 (10.0) | 2 (20.0) |
Trans womana | 8 (47.1) | 9 (52.9) | – | – | – | – | – | – |
Trans mana | 8 (47.1) | 9 (52.9) | – | – | – | – | – | – |
Trans-masculinea | 5 (29.4) | 8 (47.1) | 4 (23.5) | – | – | – | – | – |
Trans-femininea | 5 (29.4) | 8 (47.1) | 4 (23.5) | – | – | – | – | – |
Nonbinarya | 11 (64.7) | 4 (23.5) | 2 (11.8) | – | – | – | – | – |
Genderqueera | 10 (58.8) | 5 (29.4) | 2 (11.8) | – | – | – | – | – |
Genderfluida | 10 (58.8) | 5 (29.4) | 2 (11.8) | – | – | – | – | – |
Agendera | 10 (58.8) | 4 (23.5) | 3 (17.6) | – | – | – | – | – |
Something other than male or femalea | 1 (5.9) | 2 (11.8) | 6 (35.3) | 8 (47.1) | – | – | – | – |
Sometimes male, sometimes femalea | 1 (5.9) | 4 (23.5) | 5 (29.4) | 7 (41.2) | – | – | – | – |
Two spiritb,c | – | – | – | – | 6 (60.0) | 2 (20.0) | – | 2 (20.0) |
Cis manc | – | – | – | – | 4 (40.0) | 2 (20.0) | 3 (30.0) | 1 (10.0) |
Cis womanc | – | – | – | – | 4 (40.0) | 2 (20.0) | 3 (30.0) | 1 (10.0) |
No identificationc | – | – | – | – | 3 (30.0) | 3 (30.0) | 2 (20.0) | 2 (20.0) |
How easy to understand are the following terms when assessing gender? | ||||||||
Answer Scale | ||||||||
Very easy n (%) |
Moderately easy n (%) |
Moderately difficult n (%) |
Very difficult n (%) | Very easy n (%) |
Moderately easy n (%) |
Moderately difficult n (%) |
Very difficult n (%) |
|
Female | 3 (17.6) | 7 (41.2) | 3 (17.6) | 4 (23.5) | 2 (20.0) | 3 (30.0) | 3 (30.0) | 2 (20.0) |
Male | 3 (17.6) | 7 (41.2) | 3 (17.6) | 4 (23.5) | 2 (20.0) | 3 (30.0) | 3 (30.0) | 2 (20.0) |
Intersexa | – | 4 (23.5) | 6 (35.3) | 7 (41.2) | – | – | – | – |
Diverse | 2 (11.8) | 5 (29.4) | 5 (29.4) | 5 (29.4) | – | 5 (50.0) | 2 (20.0) | 3 (30.0) |
Womana | 12 (70.6) | 4 (23.5) | 1 (5.9) | – | – | – | – | – |
Mana | 12 (70.6) | 4 (23.5) | 1 (5.9) | – | – | – | – | – |
Transgenderb | 4 (23.5) | 5 (29.4) | 7 (41.2) | 1 (5.9) | 2 (20.0) | 5 (50.0) | 2 (20.0) | 1 (10.0) |
Trans womana | 7 (41.2) | 7 (41.2) | 2 (11.8) | 1 (5.9) | – | – | – | – |
Trans mana | 7 (41.2) | 7 (41.2) | 2 (11.8) | 1 (5.9) | – | – | – | – |
Trans-masculineb | 3 (17.6) | 3 (17.6) | 9 (52.9) | 2 (11.8) | 5 (50.0) | 3 (30.0) | 1 (10.0) | 1 (10.0) |
Trans-feminineb | 3 (17.6) | 3 (17.6) | 9 (52.9) | 2 (11.8) | 5 (50.0) | 3 (30.0) | 1 (10.0) | 1 (10.0) |
Nonbinarya | 6 (35.3) | 6 (35.3) | 4 (23.5) | 1 (5.9) | – | – | – | – |
Genderqueerb | 3 (17.6) | 5 (29.4) | 8 (47.1) | 1 (5.9) | 4 (40.0) | 3 (30.0) | 3 (30.0) | – |
Genderfluid | 4 (23.5) | 3 (17.6) | 9 (52.9) | 1 (5.9) | 4 (40.0) | 2 (20.0) | 4 (40.0) | – |
Agender | 4 (23.5) | 3 (17.6) | 6 (35.3) | 4 (23.5) | 3 (30.0) | 1 (10.0) | 5 (50.0) | 1 (10.0) |
Something other than male or femalea | 1 (5.9) | 3 (17.6) | 5 (29.4) | 8 (47.1) | – | – | – | – |
Sometimes male, sometimes femalea | 2 (11.8) | 3 (17.6) | 4 (23.5) | 8 (47.1) | – | – | – | – |
Terms in bold achieved a consensus of >70% in one of the two surveys, aterms reached a consensus in survey 1 and were not queried again, bterms reached a consensus in survey 2, cterms were requested by the experts and newly introduced in the 2nd survey.