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. 2025 Feb 19;25(1):10. doi: 10.5334/ijic.8644

Table 2.

Instruments Used in Intake and Exit Surveys.


VARIABLES INSTRUMENTS INTAKE SURVEY EXIT SURVEY

Caregiver characteristics Caregiver age, gender, country of birth, primary languages spoken at home, Aboriginal and/or Torres Strait Islander status, refugee status, educational, and household composition. X

Social isolation Four items from an index of social isolation [22,23]: unmarried/not cohabiting; infrequent contact with family or friends, and no participation in groups. Items were rated yes/no, with higher scores indicating greater isolation. X

Loneliness The three-item short form of the Revised UCLA loneliness scale [24]: Items were rated on a 3-point scale (1 = hardly, 3 = often), with higher scores indicated greater loneliness. X X

Health Six items from a 10-item Patient-Reported Outcomes Measurement Information System (PROMIS) Global Health [25] assessed caregivers’ general, physical, mental, and social health, and quality of life. Items were rated on a 5-point scale (1 = poor, 5 = excellent), with higher scores indicating better health. X X

Confidence to self-manage health problems Single item: ‘How confident are you that you can control and manage most of your health problems?’ [26]. Rating based on a 10-point scale (1 = not at all, 10 = very). X X

Knowledge of local services Study-designed, single item: ‘Do you feel like you have a good knowledge of services in the local area to support your child and family’s health and wellbeing?’ Rating based on a 5-point scale (1 = poor, 5 = excellent). X X

Connection to the community Study-designed, single item: ‘Have you experienced a greater connectedness in your community since taking part in the WBC program?’ with participants rating ‘yes’, ‘no’, or ‘somewhat’. - X

Caregiver enablement Six items from a modified Parent Enablement Index [27,28] assessed caregivers’ ability to cope with life, understand and support their children, maintain health, feel confident about their health, and help themselves. Rating based on a 3-point scale (0 = same or less or not applicable, 1 = not confident at all, 2 = much better). The total score ranges from 0 to 12. Scores above 4 indicate greater enablement as a result of the service [29]. X

Feedback on the WBC program Six study-designed question: two on goal achievement and program recommendation (yes/no/other) and four on caregivers’ experiences of being listened to, respected, and supported, rated on a 5-point scale (1 = always, 5 = never). X