Table 2.
Instruments Used in Intake and Exit Surveys.
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|---|---|---|---|
| VARIABLES | INSTRUMENTS | INTAKE SURVEY | EXIT SURVEY |
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| Caregiver characteristics | Caregiver age, gender, country of birth, primary languages spoken at home, Aboriginal and/or Torres Strait Islander status, refugee status, educational, and household composition. | X | – |
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| Social isolation | Four items from an index of social isolation [22,23]: unmarried/not cohabiting; infrequent contact with family or friends, and no participation in groups. Items were rated yes/no, with higher scores indicating greater isolation. | X | – |
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| Loneliness | The three-item short form of the Revised UCLA loneliness scale [24]: Items were rated on a 3-point scale (1 = hardly, 3 = often), with higher scores indicated greater loneliness. | X | X |
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| Health | Six items from a 10-item Patient-Reported Outcomes Measurement Information System (PROMIS) Global Health [25] assessed caregivers’ general, physical, mental, and social health, and quality of life. Items were rated on a 5-point scale (1 = poor, 5 = excellent), with higher scores indicating better health. | X | X |
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| Confidence to self-manage health problems | Single item: ‘How confident are you that you can control and manage most of your health problems?’ [26]. Rating based on a 10-point scale (1 = not at all, 10 = very). | X | X |
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| Knowledge of local services | Study-designed, single item: ‘Do you feel like you have a good knowledge of services in the local area to support your child and family’s health and wellbeing?’ Rating based on a 5-point scale (1 = poor, 5 = excellent). | X | X |
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| Connection to the community | Study-designed, single item: ‘Have you experienced a greater connectedness in your community since taking part in the WBC program?’ with participants rating ‘yes’, ‘no’, or ‘somewhat’. | - | X |
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| Caregiver enablement | Six items from a modified Parent Enablement Index [27,28] assessed caregivers’ ability to cope with life, understand and support their children, maintain health, feel confident about their health, and help themselves. Rating based on a 3-point scale (0 = same or less or not applicable, 1 = not confident at all, 2 = much better). The total score ranges from 0 to 12. Scores above 4 indicate greater enablement as a result of the service [29]. | – | X |
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| Feedback on the WBC program | Six study-designed question: two on goal achievement and program recommendation (yes/no/other) and four on caregivers’ experiences of being listened to, respected, and supported, rated on a 5-point scale (1 = always, 5 = never). | – | X |
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